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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-30-2012, 08:50 AM | #1 | ||
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Iīve had this very rarely and it surprises me that it should come at the end of a progression of myasthenic muscle sets to be involved and not at the beginning.
The left eye lid will droop just a little itīs definitely mild, but it feels like more than just the eyelid is affected around the cheek and eyebrow seem involved as well. One side of the face feels a bit like night and the other like day. I know itīs not a stroke as itīs fluctuating and will go away with a cooler breeze/change to a cooler room. Does ptosis affect a larger area than just the eye itself? Thanks Anacrusis |
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"Thanks for this!" says: | seishin (03-01-2013) |
09-30-2012, 09:45 AM | #2 | ||
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Sounds like you are experiencing facial weakness in addition to ptosis. They commonly go together.
Sorry. ` |
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"Thanks for this!" says: | Anacrusis (10-02-2012) |
09-30-2012, 10:08 AM | #3 | ||
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09-30-2012, 10:32 AM | #4 | ||
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Dear friend, well, thats exactlt what always happens to my face! Ptosis never comes alone here, I always have ptosis (1 side way more visible then other) accompanied by weak cheeks and no expression. Most of the time it's one side thats looks almost normal, the other side is weak and weird (stroke like).
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"Thanks for this!" says: | Anacrusis (09-30-2012) |
09-30-2012, 11:17 AM | #5 | ||
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Quote:
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09-30-2012, 11:59 AM | #6 | |||
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I don't feel anything with my ptosis. If it is severe enough it will obstruct my vision. Other than that, I can only tell that I have it by looking in the mirror. Well that and by noticing that people are staring at my eyes and then they look away when I notice....
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Celeste |
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"Thanks for this!" says: | Anacrusis (10-02-2012) |
09-30-2012, 12:25 PM | #7 | ||
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Quote:
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09-30-2012, 12:35 PM | #8 | |||
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Quote:
kathie |
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09-30-2012, 01:50 PM | #9 | ||
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Thanks much for sharing your ptosis symptoms Kathie!
I also got a really strange sensation at base of skull back again which might hang together with this or it might not. Also my son has double vision and intermittent ptosis which has us all even more confused. Will be good to get to first neuro appointment but donīt expect they will know more than you guys do ! |
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09-30-2012, 03:08 PM | #10 | |||
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Anacrusis I know they say MG is not inherited but my mom and 2 of her sisters had it plus I think my sister has MG.
Mike |
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"Thanks for this!" says: | Anacrusis (10-02-2012) |
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