So the neuro sent me for a VEP and BAER today. Has anyone ever had these test and has it helped to prove MG or am I just going in the wrong direction?

Last night both eyes were so weak both upper eyelids were quivering like jello. My eyes seem to be getting worse but the muscle weakness has stabilized since the weather has turned cold.

thanks
kathie

Kathie, I'm sorry you're still in limbo. It often isn't as easy as, "Hi, there, patient . . . your eyes are droopy so I guess you have MG."

Does your neurologist think you have MS? Or is he ruling it out . . . by charging your insurance company as much money as possible. Have you had a brain MRI?

http://www.webmd.com/multiple-sclero...otential-tests

Is this neurologist an MG expert? Isn't your RSD isolated to a specific area?

A SFEMG should not make RSD worse. I'm not expert but it's the more specific test and would probably be done on a deltoid (shoulder), EDC (wrist) and/or frontalis (forehead) muscle.

I hope you don't have to wait too long for answers. Hang in there. If you get worse and have muscle weakness that makes you unable to walk/move well, swallow or breathe, dial 911. If you do have MG, it can get worse fairly quickly.


Annie

The neuro said he did not think I have MG, but he did not say what he thought I did have. He is not a MG expert but he does have another MG patient. I have a brain MRI next Wednesday. Tomorrow, I have a bunch of blood test including the MG antibodies, anca antibodies, aldolase and serum electrophoresis.

My RSD is in my left foot, but I have dystrophy in my whole left leg from the RSD. I hope one of the tests show something they can treat. I guess from the test he may be suspecting MS.

The eye symptoms are the worse. Most of my weakness is in my legs, I stumble alot. Today the shoulders and arms were very weak. I have not had shortness of breathe since the summer heat is gone. I do have alot of coughing with a wheeze. I watched a video for choking problems on-line from an occupational therapist and it has really helped with the choking and swallowing problems.

My doctor network post the blood test on-line so I should know in a week the results. My next neuro appointment is not until early November. I will let you know how it goes.
thanks,
kathie