I started out with one noticeable symptom: weak side muscles. The doctor said I had an inner ear virus, because they put me off balance. I walked swaying side to side for the first year of my illness. But for the past two years, I haven't really had that symptom. Sometimes I fall forward from the waist.

For a course of about year, my weakness headed down: swallowing troubles, weak neck, weak sides, weak hands, weak legs...I was hoping it would head out the bottom of my feet, and I'd be all better. But then it started at the top again.

A year and a half ago I was having trouble swallowing. Not any more. I haven't had that symptom for over a year.

I think I always feel some weakness in my neck and arms. But the weakness in my legs and sides/back comes and goes.

Abby