Hello,

I am new her

I was wondering what you make of the following list:

-fluctuating fatigability / weakness in varying muscles, which increases with exercise and improves with short rest. Forcing when the muscle is already very tired can make the muscle temporarily unusable. Most affected muscles are in trunk, neck, legs. Sometimes in arms (shoulders) Few in chewing / swallowing muscles.

-fluctuating ptosis, sensitive to effort, improves with cold, worsenes with heat (heat increases the problem in other muscles too)

-extensive muscle testing in the hospital ( on a good day) shows muscle weakness in some muscle groups: neck (30 seconds instead of the 2 min your supposed to be able), hips / legs (mild, can make the 2 minute test, but can't lift my leg afterwards) and eyes (can not close them properly)

-single fiber EMG showed some mild deviations(2 with increased jitter, 1 with block) in a muscle which wasn't weak visibly weak at the moment of the test (not even after provocation). (more than 10% of the measurements, counts as a deviation, 3 out of 20 = 15%)

- I have hypothyroidism: auto-immune, there are other autoimmune diseases in the family

-antibody negative / RNS EMG negative

According to the doctor this can not possibly be myasthenia. In my idea there must be a misunderstanding. He asked if I ever considered visiting a psychologist, since I seemed to be obsessed with my symptoms (I had to discuss very long before every new test, so yes I am a bit obsessed by now)

I like your opinion before thinking what should be my next step.

If my English isn't very well I apologize for that, I live in a none English speaking country.

with kind regards,
Matilda