I'd wait on the caffeine! If your doctors want to see how you are doing on Plasmapheresis and Pred, without Mestinon, adding coffee with caffeine "might" not give them the picture they're looking for.

Annie

Yes, i am on 6x60 + 180 mestinon plus 20 mg prednisone and appointment was at 8 am which is why i thought kinda strange that he would say no ocular myasthenia. Not that he wasnt ok but He made comment about sending letter to my neuro and although he didnt say it he actually made me feel like he thought he was some sort of genius that was going to educate my neuro because he figured out i must have pulled off some sort of trick on my neuro. Just stange to me he wouldnt say something like great seems meds are working in that you dont have any ocular MG weakness right now at this moment, i would bet his notes make no reference to consideration to effect of meds.

Oh well, such is what we have to deal with. As divorce lawyer i frequently hear from clients that such and such is not fair, right and i tell them i never said would be fair so i suppose i will just take some of my own advice and i will be even more thankful for this forum!

It is interesting that one ophthalmologist seems to jump on the symptoms and call it MG based on symptoms alone like mine did, and another seems to think that MG doesn't exist. I would be very surprised if you went to my doctor and he called it anything but MG based on what you have said on this forum. I wonder who is correct.
Either way, will his diagnosis make a difference in your treatment since the neuro already says you have MG?

I'm sorry that you had a frustrating day.

No i dont think my neuro will care what this guy says. They dont know each other and i think my neuro is confident in his ability - perhaps the biggest reason i like him so much was the first time i met him was his response when i had told him so many other doctors said it was in my head and i could tell he did not approve of that and assured me wasnt in my head. Not that he believes everything i say and i can tell he is cautious about discerning what is perhaps anxiety driven symptoms (i think my breathing issues) versus genuine weakness, etc. even so he is not perfect but at least i feel like he considers me a unique patient and has even agreed to my suggestions (ie starting mestinon, adding timespan, increasing prednisone) in between appointments.

On a positive note yesterday and today were the best days i have had in awhile...i am thinking the prednisone is starting to kick in...it has been 5 weeks, 3 weeks at 10 mg and 2 at 20 and other than some weight gain (which i think has more to do with my emotional eating issue when bored and too tired to do anything) no sidde effects so far.