Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 10-10-2012, 12:19 PM #1
Geode Geode is offline
Junior Member
 
Join Date: Feb 2011
Posts: 91
10 yr Member
Geode Geode is offline
Junior Member
 
Join Date: Feb 2011
Posts: 91
10 yr Member
Default Do strangers openly pity you?

Apparently I look horrible when I'm not feeling well. Even though my illness has never even been severe enough to require hospitalization. Complete strangers are prompted to give me stuff. Examples: at a gift shop, another tourist gave my mother jewelry to give to me. Last night, even after reassuring the cashier at Subway I was alright, she put unpaid cookies in my bag.

Do you guys get this, too? I'm thinking of having symptoms at a car dealership
Geode is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
cait24 (10-10-2012), pingpongman (10-10-2012), RavenC (10-11-2012)

advertisement
Old 10-10-2012, 12:25 PM #2
rogerm213's Avatar
rogerm213 rogerm213 is offline
Junior Member
 
Join Date: Oct 2012
Location: Maine
Posts: 45
10 yr Member
rogerm213 rogerm213 is offline
Junior Member
rogerm213's Avatar
 
Join Date: Oct 2012
Location: Maine
Posts: 45
10 yr Member
Default

If it works at the car dealership let me know. It is funny while leaving the hospital today I had on these bright colored Newton running shoes. Instead of looking at my drooping eyes I had 3 people say nice shoes!
rogerm213 is offline   Reply With QuoteReply With Quote
Old 10-10-2012, 02:46 PM #3
StephC StephC is offline
Member
 
Join Date: Jul 2012
Location: Fort Lauderdale, FL
Posts: 286
10 yr Member
StephC StephC is offline
Member
 
Join Date: Jul 2012
Location: Fort Lauderdale, FL
Posts: 286
10 yr Member
Default

Lol some days i know i look really drained but no pity free gifts yet!
StephC is offline   Reply With QuoteReply With Quote
Old 10-10-2012, 03:58 PM #4
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hello Geode

I had to smile at your free gifts. Apparaently nobody looks good when sick or in pain. Pain shines right through. Accept the gifts, and get to that car dealership. Hope you feel better soon. ginnie
ginnie is offline   Reply With QuoteReply With Quote
Old 10-10-2012, 04:35 PM #5
cait24's Avatar
cait24 cait24 is offline
Member
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
cait24 cait24 is offline
Member
cait24's Avatar
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
Default

Forget the car dealership, visit a bank on a bad day. And let us know if it works.

Thanks for the chuckle. I needed it, I had a bad day today.
Kathie
cait24 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (10-10-2012)
Old 10-10-2012, 06:54 PM #6
southblues's Avatar
southblues southblues is offline
Member
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
southblues southblues is offline
Member
southblues's Avatar
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
Default

I think the bank and the car dealership would be nice.
People often think that I am sad or depressed.
Other people think that I smoke pot.
Droopy eyelids and slurred speech with a staggering gait will do it.
__________________
Celeste
southblues is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
cait24 (10-10-2012), RavenC (10-11-2012)
Old 10-11-2012, 04:36 AM #7
RavenC
Guest
 
Posts: n/a
RavenC
Guest
 
Posts: n/a
Default

Quote:
Originally Posted by southblues View Post
I think the bank and the car dealership would be nice.
People often think that I am sad or depressed.
Other people think that I smoke pot.
Droopy eyelids and slurred speech with a staggering gait will do it.
I never get free stuff! I do however get a lot of:
-"what is wrong with you, do you need an ambulance?" (they think of a stroke, or f.e. when I suddenly fall on the ground)
-people doing stuff for me without me asking, but just because of a wheelchair.
-"how brave of you!" when Im in a wheelchair (?)
And, most of the time people think I'm lazy and using pot. I often have a "tired" expression, stare into nowhere and a bit of overall weakness. And because Im young, no one ever suspects I can be sick.

When I have to sit on a chair in the supermarket, the old people laugh: you must be tired! (sarcastic) or, don't be so lazy. but free gifts? Ooh, I wish!
  Reply With QuoteReply With Quote
"Thanks for this!" says:
Geode (10-12-2012)
Old 10-12-2012, 09:51 PM #8
Geode Geode is offline
Junior Member
 
Join Date: Feb 2011
Posts: 91
10 yr Member
Geode Geode is offline
Junior Member
 
Join Date: Feb 2011
Posts: 91
10 yr Member
Default

Roger, I'll have to try the shoes, they sound like a fun diversion from the face. Kathie, loved your bank idea! LOL

Celeste and Raven, wow, I never thought about looking like a pot smoker. I have facial flushing, so I've been mistaken for a lush. Raven, I can really relate to the other reactions you described. Thanks for sharing your experiences. Maybe you will get a free gift soon! (It would be nice if people who felt bad for me would donate to medical research instead of giving pity gifts, though.)
Geode is offline   Reply With QuoteReply With Quote
Old 10-13-2012, 07:29 AM #9
southblues's Avatar
southblues southblues is offline
Member
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
southblues southblues is offline
Member
southblues's Avatar
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
Default

Is facial flushing caused by MG? If so, does anybody know why?
__________________
Celeste
southblues is offline   Reply With QuoteReply With Quote
Old 10-13-2012, 11:12 AM #10
cait24's Avatar
cait24 cait24 is offline
Member
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
cait24 cait24 is offline
Member
cait24's Avatar
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
Default

I am still going through the diagnosis process for MG, but I go way beyond facial flushing. My whole body gets physically hot and profusely sweats like before you would passout but I don't. So to cool it down I out on the air conditioner and fans and drink ice water, This can go on for hours. Even when I get my outside body cool to the touch, my inside is still excessively hot. This always happens when my muscle weakness and unsteady gait is at its worse.

kathie
cait24 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Kindness of Strangers RSDLynnie Reflex Sympathetic Dystrophy (RSD and CRPS) 6 04-19-2009 12:02 PM
Why do we talk to strangers? mart56 Parkinson's Disease 3 01-25-2008 07:21 AM


All times are GMT -5. The time now is 10:41 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.