Guess I picked the wrong day to read this topic as my first CT Scan was just scheduled for Monday :rolleyes:

Made it through the CT scan fine with no reactions but a day later I am feeling really weak especially in my hands. Has anyone experienced a delayed reaction like this to the dye. I was feeling real good last night and was thinking I may be turning a small corner. Today I have to say I am a bit discouraged.

Any kind of stress will cause an increase in MG symptoms. The dye reaction that I experienced was immediate. It occurred within 8 seconds of injection.

Contrast Dye Iodine
 

Just a quick note....if you have are action to contrast dye....remeber that they often use iodine during syurgery prep....no need to ask me how I know:)

I had a CT with contrast last week and I felt much worse 2-5 days after with breathing function particularly. At times during those 3 days I thought I might need to go into the ER because of respiratory distress, but I was able to rest calmly until the Mestonin kicked in. Today is the first day I have felt back to my normal. The good news the results showed no Thymoma.

In 2005 I had a similar experience after being admitted to hospital for pneumonia. Before having C-Scan with iodine injection, I had had a bromium swallow. Because the bromium swallow left me with extreme difficulty with my muscles (ability to swallow worsened) the attending physician ordered the iodine C-Scan! This almost killed me literally! My MG symptoms worsened even more to the point where my bp was so high they were giving interventions throughout the days and nights which kept me ill. I was on antibioyics, prednisone, albuterol, pain killers, mestinon, allegra, receiving IFF treatment and other inerventions for hbp of which lisinopril was one. I was in hospital for 2 weeks getting worse daily. Finally the doctor called in psychologist because she was too arrogant to admit that she couldn't treat a myasthenic. When my insurance agreed to careflight me to hospital in dallas which treats myasthenics, she refused to sign order because in her words "they couldn't do anything more for me than she was doing". I was eventually discharged only to end up same night in emergency room. The next few months were horrific for me as I was in and out out of hospitals. It took 3 months before I could eat and swallow regular diet. And it took almost 6 months before I could walk without using assistive devices. I knew that I had what my doctor had termed chemical allergies and I had taken medication in past which presented problems though not quite as severe. I had been in remission and the overly agressive treatment with bromium swallow and Iodine Cat Scan almost did me in. I no longer take toxic prescriptions on regular basis and am mindful that sometimes I have to have emergency interventions with medications but I refuse iodine, antihistimines, antibioticsm pain pills, and many more. Holistic and alternative treatment is what I use.

A few years back when I had the ct scan for thymus, it was the ct tech who said they would need to take extra precautions because I might be myasthenic and more susceptible to a bad reaction to the dye.

They used a pediatric solution (a much lower iodine concentration), put it in much more slowly, and had a resident right there as the dye was administered in case there was a problem!! They were freaking me out - - but it was the beginning of my realizing that I had to be more educated and more careful.