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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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I have searched and read several posts on this topic, but would like to ask about how those who do take Mestinon use it each day.
I can see there are 2 types of instructions that have been given by their doctors. It seems that one group takes it as directed at a fixed dosage and time everyday, the other group seems to have some more flexibility on dosage and how often to take it. Recently after my first IVIG I had a pretty good response to the IVIG and felt I could reduce my dosage. My doctor does give me an amount she would like me to take each day and allows me to adjust the dosage upwards as needed a fair amount to a maximum of 8 tablets a day (normally 4) What are your thoughts on taking less than let's say the recommended 4 tablets a day if you are doing well? Is it bad to stop and restart the med? Thanks. ![]() Joe |
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