Last couple days, on and off, it feels like the air is heavy and wet to breathe, like when the humidity is up at 99% and it's warm, and it feels like you're breathing in water. But the humidity has not been near that high.

Is this an MG kind of thing?

(I don't "have" mg. I don't "have" anything, because no labwork says I have anything, and doctors here only read lab reports, not look or listen to patients. so while I have eye problems, balance problems, hearing problems, cardiac problems, breathing problems, thoracic outlet/arm circulation type problems, you-name-it problems, I don't "have" anything, since nothing prints out on paper. ophthalmologist is sure I have mg based on eye problems, but no one else will commit.)

It's hard for me to answer about the air feeling wet and heavy since I live in Georgia and the air is wet and heavy. I have noticed that when I am having a bad day and I try to do a little too much, it feels like the air is thicker and harder to breathe.

I wonder why it seems that ophthalmologists seem to be the only doctors that believe in MG?

Yes! When my negative inspiratory force (or NIF) is down, I say that it feels like I am in a steam room. I have not heard anyone else describe it this way. It turns out that my lower lung lobes have diminished breath sounds during these times too...when someone checks them. Oh! And that seems to correspond to my vital capacity being low.

Have you had your pulmonary function tests done in a booth? If you can get them done, the most impt ones are the diaphragm tests. Some places will even conduct them lying down and sitting up to show the difference in function or even before and about an hour after mestinon. My function was so dramatically better after mestinon, my neuro said it was akin to a positive tensilon test and for seronegative MG, that is priceless!

Also, I have severe and progressive hearing loss. What is happening with your hearing?

debra

My hearing turns on and off like a light switch. My right ear goes almost deaf. Sometimes it is in both ears. This happens when I am lecturing. My voice also goes all wonky. I have started taking an extra 1/2 of a mestinon pill in the middle of my lecture and it helps it not get so bad. If I lay down and rest, my ear gets better. It's just hard to do that and work too.