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Old 10-17-2012, 10:25 AM #11
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Quote:
Originally Posted by Anacrusis View Post
Abby

I wanted to add one more thing into the pot that is in some way related....
I do also feel guilt during the times when I´m feeling better and that annoys me even more than the guilt I may have felt at not being able to do enough. That those loved ones around me suddenly have a new´capable´and positive family member instead of dealing with a constant needy complainer. I´m sure they don´t always quite know what has hit them from one fluctuation to the next........

And I think to myself ´Did I really just put them through all that?´

Anacrusis
No, you didn't. MG did.

I remember one time when my husband got angry at me because I wasn't able to do ( I don't remember what).
I said to him- you know what instead of you being angry at me and me being angry at this ********illness, why don't you be angry at it directly without involving me.

This idea actually worked pretty well.
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Old 10-18-2012, 02:45 AM #12
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Originally Posted by alice md View Post
No, you didn't. MG did.

I remember one time when my husband got angry at me because I wasn't able to do ( I don't remember what).
I said to him- you know what instead of you being angry at me and me being angry at this ********illness, why don't you be angry at it directly without involving me.

This idea actually worked pretty well.
I will definitely try that idea when I have convinced him that I have an illness!!!!!

Actually - this comment really made me stop and think for a minute:

I´m about 70% convinced I have MG
My husband is about 30% convinced I have MG
The doctors are between 0% and 100% convinced - depending on which doctor!!!!!!

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Old 10-18-2012, 03:37 AM #13
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I´m about 70% convinced I have MG
My husband is about 30% convinced I have MG
The doctors are between 0% and 100% convinced - depending on which doctor!!!!!!
This, to me is the ultimate proof that you have MG.
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Old 10-19-2012, 01:59 PM #14
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I take one day at a time.
I dont have any guilt, I worked 45 hard years, most of them full time.
If I feel a bit tired one day, the sun will come up tomorrow, so eventually what needs to be done will get done.
I dont pay attention to anyone who feels they know whats best for me and my life.
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