Steph, I hope you are not thinking I am being critical of your treatment. I am pleased it is working for you and I agree if you find the combination that makes things work for you that is fantastic. I hope I too can find that combination. I just got that call that my CT scan came back normal and there are no issues with the thymus gland. Is it odd that I am feeling a bit bad that was what they found?

FYI to all - I apologize if I ever have or do offend anyone. That would never be my intent
Also please rest assured it is really hard to offend me...comes from years of being a divorce lawyer! I recognize and I appreciate that everyone has their own perspective and I think that an extremely valuable feature of this forum.

I have never ever been a social media person...I am actually a very private person in real life however the whole MG experience is such a new and foreign experience for me I was compelled to do what I felt I needed to do to come to terms so to speak. To that end this forum in particular has been very helpful for me in that it seems to strike a good balance between social and educational. Others may find other forums more to their preference as I know of some that are more personable.

Roger, I dont think there is a right or wrong way to feel or respond about any of this

I fully agree with that.

I think we are all talking from our own experience and the knowledge we have (been forced) to gain.

We want to help others not fall into the same pitfalls or make similar mistakes.

I, for one, can't say that I have found the magic potion for MG.

All I can say is that my neurologist is very optimistic about me and maybe he knows something that I don't. ( I promise to share this knowledge with you once I do :)).

I also think that I have learned to live with it reasonably well. (but I also can't ignore the fact that I have been lucky in many other ways and some of my solutions may not be applicable for others).

If what I say can help someone-that's great, if it doesn't-that's OK.

About forums
 

For me I find whatever quality I am looking for in any given group, and sometimes a quality just takes longer to reveal itself in different places. I have been a member of two other forums and occasionally I go to another forum just because I have already started a thread there. This forum doesn´t exactly send a welcome basket to each new member - however if people bother to stick around then they pick up on it´s intention which amounts to exactly the same thing :hug:. I do know I am equally as hypersensitive about posting anything on any of the forums (my ideas/feelings - other peoples ideas/feelings) but I also know that I am braver on this forum than any other. I just read something in Scientific American Mind magazine, that communication on internet can sometimes come across harsher than in real life, and they attributed it to a lack of eye contact!
Well I think everyone here is doing a pretty darned great job - all things considered :grouphug:

Steph, the medication is an important practical issue which I know nothing about, but I can wish you well during this really happy transition & time for a breath of fresh air. Enjoy it :circlelove:

Anacrusis

Alice
Your contributions here have been invaluable to me! Thanks
Steph