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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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I am taking Mestinon on a symptomatic basis.
Eyes: (works consistently) It works after 20 minutes increasing close-up focusing by 20-30 cm and double vision/unclear distance vision clears up completely for some hours. Breathing: (consistent) I still canīt get over the power of a little pill to restore diaphragm weakness to automatic gear. Deltoids: (very inconsistent) Alters physiological sensation of and also increases number of arm lifts by 70%. Trunk muscles: (no effect) Swallowing muscles: (no effect) Other non-myasthenic muscles: (no effect) The bulbar symptoms are what bother me the most at the moment and I wonder if what that means is that it might take a stronger medication to tackle these remaining symptoms which Mestinon isnīt reaching - or if it is simply a case of Mestinon going wherever it pleases in addition to our muscles behaving unpredictably on the receiving end. Thanks if you know anything about this, Anacrusis |
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