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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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I got up at 3 a.m. wore some wool clothing and became slightly overheated. That was enough to give problems lifting my arms, climbing stairs and even some ptosis in one eye which I never normally have.
There were two neuros doing the SFEMG in 3 different areas on the frontalis muscle which took 45 minutes. Ironically I was coughing spit out of my lungs for most of the testing…..nevertheless lots of perfectly spaced identical signals behaving nicely on the first electrode test, some odd looking ones on the second, and then 15 pairs of happy little jitterless signals with no discrepancies whatsoever on the third test - the SFEMG. Getting electrocuted and needled actually seemed to excite the muscles to the point that they came alive rather than collapsing or´dying out´as with excess heat or´normal´repetitive use. The neuros don´t do very many SFEMG´s at the hospital - but I did not feel I should immediately rush off and go and get another test done. I trusted they would do a good job. In fact I felt that the practitioner was more disappointed with the results not showing positive than I was. I was asked to come back in the morning for more EMG´s & another RNS of deltoid muscles (a total of 5 tests) – am not totally sure why (something about checking for other things) But I was always under the impression that, even if not always dependable, the SFEMG would have the last word over all the other available tests when it came to myasthenic weakness. For once somebody wanted to read all my notes, seemed surprised I didn´t already have a neurologist on the case, asked some great questions and wanted to hear the whole symptom history right from the beginning. Was even interested to hear about the atypical myasthenia examples and unusual SFEMG results on this forum. I now know where I can find a good doctor and a good neurologist – that at least is a good new feeling. Anacrusis |
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