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-   Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)
-   -   Is this MG? Undiagnosed! (https://www.neurotalk.org/myasthenia-gravis/178451-mg-undiagnosed.html)

Anacrusis 10-23-2012 03:18 AM

The way I look at how I overused my muscles doing normal exercise makes a lot of sense in hindsight!

What still doesnīt make much sense to me is that where I live the doctor didnīt do any myasthenic weakness tests and wanted to send me to the psychiatrist. The physiotherapist did all the right physical fatigable weakness tests and wanted to send me to a neurologist. The neurologist did some fatigable weakness tests but on the wrong muscles and then wanted to send me to the gym!

Iīve gotten slightly better at telling them what they need to do!….but very nicely!!!

southblues 10-23-2012 09:00 AM

My first neurologist said that I was crazy. The second neurologist said (in a round about way) that the first neurologist was crazy.

My symptoms may be insanity related except the ptosis. There is nothing that can convince me that ptosis is insanity related. Mestinon must help insanity a lot.

I think that a lot of doctors want to say we are crazy when they don't know what is wrong.

Anacrusis 10-23-2012 10:11 AM

Quote:

Originally Posted by southblues (Post 925011)
My first neurologist said that I was crazy. The second neurologist said (in a round about way) that the first neurologist was crazy.

That is some neurologist!!! My doctor backed off when I asked him to give me the test to prove that my myasthenic weakness was based on psychosomatic origins and why hadnīt he got the test right there in his office for me to take. He even went in and changed my journal after I challenged the unproven diagnosis.

But itīs not easy, is it?

....īDoctor, doctor......why does my eyelid start drooping when I use my leg muscles?!!!!!īīBut Doctor, I did have the weakness 2 hours ago - but now itīs not there any more!!!ī

I, like you Celeste, am such a skeptical person about medications that I am not a good candidate for placebo effect either! I did not expect Mestinon to work at all and certainly not on vision and breathing problems but it did, and then I will spend most of the time expecting it to stop working!! Anyway so I wonder if Mestinon actually improves myasthenic weakness caused by psychosomatic diseases!!

Anacrusis

alice md 10-23-2012 02:03 PM

Quote:

īDoctor, doctor......why does my eyelid start drooping when I use my leg muscles?!!!!!
That is because of the Mary Walker effect, that so few modern neurologists ever heard of or seen.

I have no idea why, because patients seem to still have it, just like they did at the time of Mary Walker. ;)

Anacrusis 10-23-2012 02:18 PM

Quote:

Originally Posted by alice md (Post 925108)
That is because of the Mary Walker effect, that so few modern neurologists ever heard of or seen.

I have no idea why, because patients seem to still have it, just like they did at the time of Mary Walker. ;)

Yes! I learned it from you!!!! Can you imagine telling a doctor who is already not receptive to the idea of fluctuating weakness that when you activate one muscle set another is sparked off - especially when they think your symptoms are psychosomatic to start with?!!!! :)

It really is some phenomenon that one. I would actually have picked that one for a research paper if I were a medical student :)

alice md 10-24-2012 06:31 AM

Quote:

Can you imagine telling a doctor who is already not receptive to the idea of fluctuating weakness that when you activate one muscle set another is sparked off - especially when they think your symptoms are psychosomatic to start with?!!!!
Unfortunately, I do not have to imagine this. I was stupid enough to do it. :Crazy 2:
I leave it to your imagination to think of the result of this stupidity. :Oops:


Hint: :Sinking::Bang-Head::Wheel::Doh:

southblues 10-24-2012 07:52 AM

I found who Mary Walker was, but what do you mean "Mary Walker effect" exactly?

alice md 10-24-2012 08:59 AM

Basically: When an MG patient uses one set of muscles it leads to weakness of other/remote muscles.
This is even more so if ischemic conditions are created during the exercise (such as by putting a blood pressure tourniquet on the arm).
Mary Walker thought it was an important diagnostic sign (probably like the SFEMG is seen today).

She was asked by a colleague-we tried the arm constriction method you showed us on a patient suspected to have MG and got no results. Could this be considered a negative test for MG?

http://annals.org/article.aspx?articleid=689226

http://neurologyminutiae.blogspot.co...is-pearls.html

http://www.ncbi.nlm.nih.gov/pmc/arti...01551-0056.pdf

http://content.karger.com/produktedb...E2005053001051

Anacrusis 10-24-2012 08:59 AM

Quote:

Originally Posted by southblues (Post 925328)
I found who Mary Walker was, but what do you mean "Mary Walker effect" exactly?

Thereīs some stuff here also....

http://neurotalk.psychcentral.com/thread172032.html

Anacrusis


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