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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-23-2012, 03:18 AM | #11 | ||
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The way I look at how I overused my muscles doing normal exercise makes a lot of sense in hindsight!
What still doesn´t make much sense to me is that where I live the doctor didn´t do any myasthenic weakness tests and wanted to send me to the psychiatrist. The physiotherapist did all the right physical fatigable weakness tests and wanted to send me to a neurologist. The neurologist did some fatigable weakness tests but on the wrong muscles and then wanted to send me to the gym! I´ve gotten slightly better at telling them what they need to do!….but very nicely!!! Last edited by Anacrusis; 10-23-2012 at 06:56 AM. |
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10-23-2012, 09:00 AM | #12 | |||
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My first neurologist said that I was crazy. The second neurologist said (in a round about way) that the first neurologist was crazy.
My symptoms may be insanity related except the ptosis. There is nothing that can convince me that ptosis is insanity related. Mestinon must help insanity a lot. I think that a lot of doctors want to say we are crazy when they don't know what is wrong.
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10-23-2012, 10:11 AM | #13 | ||
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But it´s not easy, is it? ....´Doctor, doctor......why does my eyelid start drooping when I use my leg muscles?!!!!!´´But Doctor, I did have the weakness 2 hours ago - but now it´s not there any more!!!´ I, like you Celeste, am such a skeptical person about medications that I am not a good candidate for placebo effect either! I did not expect Mestinon to work at all and certainly not on vision and breathing problems but it did, and then I will spend most of the time expecting it to stop working!! Anyway so I wonder if Mestinon actually improves myasthenic weakness caused by psychosomatic diseases!! Anacrusis |
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"Thanks for this!" says: | southblues (10-24-2012) |
10-23-2012, 02:03 PM | #14 | |||
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I have no idea why, because patients seem to still have it, just like they did at the time of Mary Walker. |
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10-23-2012, 02:18 PM | #15 | ||
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It really is some phenomenon that one. I would actually have picked that one for a research paper if I were a medical student |
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10-24-2012, 06:31 AM | #16 | |||
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I leave it to your imagination to think of the result of this stupidity. Hint: |
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10-24-2012, 07:52 AM | #17 | |||
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I found who Mary Walker was, but what do you mean "Mary Walker effect" exactly?
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10-24-2012, 08:59 AM | #18 | |||
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Basically: When an MG patient uses one set of muscles it leads to weakness of other/remote muscles.
This is even more so if ischemic conditions are created during the exercise (such as by putting a blood pressure tourniquet on the arm). Mary Walker thought it was an important diagnostic sign (probably like the SFEMG is seen today). She was asked by a colleague-we tried the arm constriction method you showed us on a patient suspected to have MG and got no results. Could this be considered a negative test for MG? http://annals.org/article.aspx?articleid=689226 http://neurologyminutiae.blogspot.co...is-pearls.html http://www.ncbi.nlm.nih.gov/pmc/arti...01551-0056.pdf http://content.karger.com/produktedb...E2005053001051 |
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10-24-2012, 08:59 AM | #19 | ||
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Quote:
http://neurotalk.psychcentral.com/thread172032.html Anacrusis |
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