NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)

- - Your voice? (https://www.neurotalk.org/myasthenia-gravis/178588-voice.html)

Quote:

Originally Posted by SoftTalker (Post 926731)

This may be a double post.

Whoops - may have accidentally posted before completely answering. My arm/hand dropped on computer. Blame MG....

Re: Voice

My voice became weak - sometimes very weak after MG symptoms began. (Ocular symptoms came first).

I was working - had to attend and participate (speak) in meetings. After MG came - things changed. I was frequently asked to SPEAK UP. I tried. I could not. Hmmmm.....that was not a problem in the past. Medicinal treatment for MG has since helped - somewhat.

ALSO: This seemed odd to me....(at first)

I used to often "clear my throat" when talking.
And after eating.

When I began taking mestinon this stopped. :eek:

Ironically - a fairly new (social) acquaintance - who is now a friend - told me she thought I had a "tic" - perhaps slight case of Tourettes (spelling?) when she first met me. Ironic - because my SIL and nephew have Tourettes.

My friend is a psychologist and just accepted this little "quirk" I had. I knew I did this - did not really how much though....... My friend says it was a LOT.

This particular symptom is gone - unless my MG is severely exacerbated. I know I am getting into trouble when I start clearing my throat excessively.

Also there were, still are at times, words that I could not/cannot pronounce. I sound slurred at times. Get asked to repeat what I just said.

Also, when I get tired, or breathless - I "yawn" when talking. This does not always come across well with others. Trust me I am interested - not bored. I just have MG.....

But my soft voice has been one of my most pronounced symptoms.

Hey, I just figured out my nickname I chose for this group:

"SoftTalker"

I suspected it!

These are great examples....What you might loose in your vocal expression you may more than make up for in your WONDERFUL expressive writing!!!!!!! :cool:

Thanks & Welcome!

A few anecdotes (you reminded me of) re: voice.

1. 20 years ago (in retrospect) I had the first episode of this illness.

I had a spontaneous and gradual recovery.

But, for quite a while my voice stayed very soft.

One day, during rounds I mentioned what I thought about an X-Ray we were looking at. The attending physician was the only one who heard what I said, as I was standing next to him. He thought I was very shy and timid (which trust me I am not).

He told everyone to be quite and said-listen to what she has to say. She may say it softly, but it is worth listening to.

A few years ago, I had a patient who would tell me when he walked into my office-I know that today you are not feeling so well, I could hear you very soft coughing while I was in the waiting room.
And he was always correct.

Another patient walked into my office and after she heard the way in which I greeted her, closed the door and said to me- I am going to sit her, while you rest. People will think you are examining me and will not bother you.

A good friend who is a neurologist when talking with me and seeing me after my discharge from the hospital in "remission" asked me if my neurologist (at the time) is both deaf and blind.

So, our voice tells a lot, to those who want to listen.