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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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12-19-2012, 04:44 PM | #51 | ||
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I have also read that droopy eyelids should improve with rest, I have noticed that my droopy eye is either the same or just a hair more droopy first thing in the morning, is that normal? I think I'm spending too much time looking in the mirror! |
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12-19-2012, 08:58 PM | #52 | |||
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While on the Tensilon, I noticed a drop in pain. I'm on Mestinon and prednisone now, and until I fell Friday and developed shingles on top of it all, yes, the pain all but vanished! Even this "bursitis" in my knee from after replacement surgery had gone. 1prescription of oxycodone (small dose) lasted me for 4 months, two of them without any painkiller at all. Well, ok, except when T.S. came through. Weather sets everything off with me! Now, of course, I'm a mess again. Neuro almost won the Leg War today, which was depressing. I have been on a horse since a baby, and with "fibro", still managed to go from 20 minutes up to a 5 mile distance ride. Now I will have to start over, if I ever get stable enough to get back up.
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12-19-2012, 09:00 PM | #53 | |||
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You gotta get a nice mounting block.........
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"Thanks for this!" says: | Oops3 (12-19-2012) |
12-19-2012, 09:07 PM | #54 | |||
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Oh, and as for getting old? I moved to Otter Road 10 years ago at age 53 and renovated one very expensive piece of property, barn and house. Much of that work was done personally, even in Florida summer heat. This past year has seen everything catch up to me, from IBS, to cataracts, to a re-diagnosis of MG and the extreme heat intolerance it brings(I'm moving to Gainesville as I get better, where summers are shorter, winters are colder and less humid, and everyone's allergies clear up.), suspected ulcers, mental breakdown over last winter. So old? Naw! It's the MG dearie! And I have yet to accept that life as I knew it may be gone. Or is it my impatience to mount up again?
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12-19-2012, 09:11 PM | #55 | |||
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Mestinon is synthetic IBS..........
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"Thanks for this!" says: | Oops3 (12-19-2012) |
12-19-2012, 09:11 PM | #56 | |||
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Actually, I had this HUGE older Appaloosa gelding, and as a Christmas present, my best friend/sister/trainer had a huge one built for me. When I first started riding the little pony after the knee surgery, I found I could mount him by just sliding on if he stood real close. He caught on to what I wanted, and after the first mount, understood why, and forever after would only let me mount in that way. Very smart little guy.
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"Thanks for this!" says: | southblues (12-19-2012) |
12-19-2012, 09:13 PM | #57 | |||
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Had the IBS long before theMG and Mestinon. Don't think it's done anything to make it worse....
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12-19-2012, 09:14 PM | #58 | |||
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That's good. It gave me IBS symptoms to start with, but I don't have that much problem with it now.
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12-19-2012, 09:15 PM | #59 | |||
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Is that like me spending too much time on the ground?<grin> @Memmsaw
Last edited by Oops3; 12-19-2012 at 09:17 PM. Reason: Wanted person to know I was speaking to them |
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12-21-2012, 04:45 PM | #60 | ||
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I guess there isn't much else I can do. I will ask my neurologist about the tensilon test when I see her in January. Feel a little like an anvil is hanging over my head and I'm just waiting for it to drop! The upcoming holidays and time with my husband, kids & grandkids will be a welcome distraction. |
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