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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-04-2012, 09:26 PM | #11 | |||
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I can't imagine how terrifying it must have been to fall with your baby. Was the baby ok? This whole illness is a major pain.
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Celeste |
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11-04-2012, 09:43 PM | #12 | ||
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She was fine, more scared than anything, at that point I was scared to death they had no idea what was wrong with me and I was in BAD shape with 2 small kids and couldn't even take care of myself!! I had moved in with my parents (my husband works out of town) I was almost grateful when they put a name to what was wrong with me, then when I took my first dose of Mestinon I thought it was "my wonder drug" I felt like a brand new woman. I'm lucky that it is well controlled
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11-04-2012, 09:47 PM | #13 | |||
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I'm glad it helps you so much. It helps me as well.
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11-05-2012, 02:25 PM | #14 | ||
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Tripping was one of my earliest generalized MG symptoms. I had started to trip ALOT - and it became especially notable when walking on uneven surfaces. Even now, my body picks up the most subtle change of walking "terrain".
I have fallen a few times; I believe my falls are most often the result of tripping (vs sudden muscle weakness). What causes the tripping? To me, it is a combination of muscle weakness AND balance problems. I once tripped walking in my favorite rubber-soled slippers that got "caught" in my wall-to-wall carpet. Legs were weak, hadn't lifted my foot high enough, I guess. Yikes, thought I was a "goner" as I was going down. Now, when walking inside, I generally have my hand out, touching a wall or furniture or counter-top. When my MG is severe I use a walker. But I don't like using a walker - it feels so "cumbersome" to me. Navigating out of my home - I use a cane, forearm crutches or the arm of the person I am walking with. This way, if I trip, or start to feel weak, I have some type of support. SoftTalker (Sue) |
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"Thanks for this!" says: | wild_cat (11-05-2012) |
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