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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-05-2012, 10:36 AM | #1 | ||
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http://www.mginc.mb.ca/
I happened upon this, and thought I would share before I get too distracted from what I was supposed to be doing - I didnt get to look beyond the poster but from my perspective this is good idea - seems dated but the idea being to create empathy, appeal and perhaps could get some of the more creative members thinking (not to mention I am a HUGE fan of German Sheperds!) Scroll down from the poster seemed like lots of good resources, downloads of neuro presentations, etc but I didnt get to look at it beyond that. Stephanie |
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11-05-2012, 03:36 PM | #2 | ||
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Grand Magnate
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Thanks, Steph. I know you guys have been talking about how to best get the word out there about MG. If I weren't so completely worn out, I'd try to come up with a "marketing" plan. It's a lot of work to put together stuff like this and it might be best to contact MGFA to see what the heck they are doing for us!
www.myasthenia.org And why they think that having the 2013 National conference in Miami in May is a smart idea . . . I'm sure the hotel is air-conditioned but even a two minute walk outside in that Florida steam can tank my MG! Annie |
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"Thanks for this!" says: | pingpongman (11-05-2012), StephC (11-05-2012) |
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