[scrubbs]

I noticed your reply to KellyAnn and I got wondering about your Cytoxan treatments and if there were even more of a reduction in other treatments.

I will be seeing another neuro on Nov. 6.

Just curious. Thanks:

scrubbs

[Juanitad]

Hi Scrubbs - I'm doing pretty well with the Cytoxan. My last treatment was mid September and I have another mid-November (8 weeks apart). The one in Nov will be my 3rd with the 8 week separation and my doc and I will be discussing if we go on or if we try something else. The cytoxan has made my breathing stronger, but my legs have started to weaken and I haven't had that problem in the past. I asked the chemo doc if I could continue the cytoxan and he said we could if I didn't become toxic and he would continue to check that every time I had a treatment (probably 8 weeks apart).

I'll post another update once I see the docs mid-November. Hope your appointment goes well!

[scrubbs]

Juanita;

Sorry to hear about your legs. I sure hope your November post about your conditition brings good news.

Good luck;

scrubbs

[AnnieB3]

Tony, I know you'll look at all of the issues with Cytoxan, since you're very thorough about everything. Are you getting worse?

Juanitad, I'm glad things are going okay for you. You know, these drugs can deplete your body of nutrients too. It might be a good idea to have your primary doc check you out for any deficiencies that could contribute to the leg weakness (vit. D, B12, electrolytes, thyroid, etc.). They do check your kidney and liver function, right?

It's so sad that some MGers have to resort to such strong drugs just to live a normal life. At least there are those options but I honestly wonder how people who have had them in the past are doing now.

Annie

[scrubbs]

Annie;

Just noticed your post. I see new neuro tomorrow. Not expecting any miracles and I don't think he will not let me do anything crazy.

Really just want a fresh set of eyes reviewing my condition.

Actually I am feeling better right now than ever. Go figure.

Tony