Funny thing - my gyn recommended my current neurologist and HRT to try to help. Some doctors have a good well rounded education. They work together to try to help me but I continue to decline. Just tried IVIG and except for aseptic meningitis and a BAD reaction to the spinal tap, looks like it worked!!!

Funny, I was having weird cycles every 2 to 3 weeks - (perimenopausal maybe?) prior to taking predinosone and mestinon - haven't had a period since I started the meds. Anyone else find that?

I use hormone replacement therapy. So far it has neither cured me nor killed me. Without it I have a lot of symptoms that could be described as perpetual PMS, but I don't think that my MG is changed by it one way or the other. I could be wrong. I have been on if for several years. (I had a hysterectomy several years ago.)

JenniM- yes prednisone can "mess up" your cycle.. .. not sure to what extent, but I believe people may not have a cycle until they come off of it.. that's a nice side effect! :)

Hi Christa,
I too suffer sever exacerbations due to my cycle. Usually it's about two days prior to my monthly. Overall I get much weaker but my legs are the worst. I can barely walk until about day two. Unlike most of the others, I've noticed an improvement around the week of ovulation. As well as feeling skinny and having clear skin. Must be my body trying to seduce into another baby. Lol not gonna happen body!!! Hope this helps
Jess

I suffer too. Normally the week before mine, I'll get small things like my speech will go off, I'll feel extra tired in my legs, and I'll notice my blood sugar constantly stays in the low end (like my muscles are trying to get all the energy it can and it drains me), and every so often I will tremble in my hands.

*This* month however, it seems to have started early so now I am at about 2 weeks prior to mine, and I have been feeling like total crap. Complete back pain, weak or heavy feeling in the legs and arms, my speech isn't as good as it once was. Part of it is probably still me catching up from the holidays (I work retail, you can imagine how fun that is!). It's incredibly frustrating to know that for 1-2 weeks every month I will feel horrible. Where's the fun in that :rolleyes: