went in hospital sun - flew into town, got to hospital about 3:00 and after waiting for a bed till about 7 pm they started IVIG about 9/10 pm. next am feeling very weak. On monday although supposed to start IVIG at 7:00 pm they didnt even start till about 10:30 which meant i didnt get to sleep till after 1 am and then was interrupted all night. no surprise i woke up feeling really really weak yesterday. i then went into lawyer mode and told them unacceptable for me to sit around all day feeling lousy and then keep me up all night and insisted they start ivig during day (squeaky wheel gets greased). yesterday they started ivig at about 4 or 5 finished by 7 pm and although i had some REALLY strange dreams, I woke up feeling much much better today. today is my last treatment and i will be discharged tomorrow. My doctor told me to stay in town till Friday so i am leaving hospital and going to a hotel.

I am hopeful I will actually be up to seeing some of the nearby sites tomorrow (hotel is in downtown area near to museum and restaurants)

Stephanie