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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-05-2012, 11:18 PM | #1 | |||
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Junior Member
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Can anyone reccomend a doc in the NYC area? Currently being treated at the Cleveland Clinic but I would love to be followed by someone closer (if this is in fact MG).
Thanks! |
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11-18-2012, 09:19 AM | #2 | ||
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Junior Member
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Quote:
I live in nyc and have seen a few differnt neurologists. At Hospital of Special Surgery on the Upper East Side I see Dr. Lange. He's very nice and takes time to explain everything he's doing. He also is able to keep in touch by email which is great if youre a busy individual. *edit* If you have thymoma, I've heard Dr Xi Chen from MSKCC is also very nice. *edit* Good luck in your search! Last edited by Chemar; 11-18-2012 at 10:02 AM. Reason: Linking guidelines for new members |
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"Thanks for this!" says: | AnnieB3 (11-18-2012) |
11-23-2012, 11:12 PM | #3 | ||
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hello the doctor i found is Dr Denis Ostrovskiy of Neurological Associates of long island in Lake Success, Ny near the queens border who is assiciated with North Shore University Hospital , North Shore LIJ Hospital and St Francis Hospital in Roslyn NY. Appointments are on time and i felt 100% confidence from day one. It is my pleasure to have found this doctor.
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"Thanks for this!" says: | AnnieB3 (11-24-2012) |
11-26-2012, 11:41 PM | #4 | |||
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Junior Member
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Thank you so much for the suggestions!
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11-27-2012, 12:06 AM | #5 | ||
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New Member
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HELLO last year after i was upstate ny at a fairgrounds driving home one of my eyes strarted closing i thought it might be allergy or even a cold on my eye, that lasted for a week or so and i went to my primary and they also thought it was allergys and treated me for such saying iw will go away and long last it did and i was ok for almost 10 months then again about the same timeof the year it came back but this time in both eyes watery and drooping and i went back to my primary and they prescribed heavy antihistimines and anti-biotics and had to go back again. then i went to an allergist who said right away it was something else so i started to Google drooping eyes and then went back to my primary who then said is MG and he recomended i see a neurologist the next day and i did. The onr i saw said he only had 5 patients in 10 years with MG. He put me on mestinon 60mg 3x a day but after a week i got worse and went to the ER where i was put into medical ICU right away and was started on plasmatheris right away as i was in crisis. i was in the er for almost 2 weeks and had a total of 9 plasmatheris treatments there and felt better but when they put me on predisone i guess the anti-bodies burst out from my body and weakened me again. while there i spoke the best i could to every Neurologist is saw there asking about my disease as i was never in a hospital for more then a day at any time. They recomended one Neurologist in their group who specializes in MG. I am out of the hospital now 35 days and my eyes are wide with no vision problems and am only left now with mild speach problems and my throat is getting strong. The speach and throat was the last things to go out on me and i guess will be the last things to come back. My attitude is good and with great confidence in my doctor i know i will be 100% soon again.
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