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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-12-2012, 09:38 AM | #11 | |||
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At least I had one good day on Saturday, but I paid for it yesterday. My adult daughter wanted to go back to Walmart again, so I had to use one of the electric carts to get around. My muscles were weak again and I guess I did so much yesterday that the joint in my big toe was hurting making me limp. I tend to push myself to walk even though it's hard, but yesterday there was no way.
Maybe it's not the Mestinon dosage and maybe I just have to accept my limitations. |
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11-14-2012, 12:08 AM | #12 | ||
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I've had MG for 30 years. Many years all I needed was 1/4 to 1/2 Mestinon to alleviate my symptons. At those times, taking 60 mg would cause me to overdose and increase my weakness. If you find that the 1/2 is a little too much (periods of inactivity), try 1/4.
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11-14-2012, 11:39 AM | #13 | |||
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You're right, I think I need to adjust the dosages. Not only am I having breathing trouble right now but my chin is drooping dramatically. I'm going to try and rest today instead of pushing myself. I haven't been resting like I should.
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11-14-2012, 10:41 PM | #14 | ||
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What I have always done is take the minimum - maybe 15 mg - then add 15 every 1/2 hour (that's how long it takes to work) until I feel better. Don't forget that too much makes you feel as weak as too little.
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11-16-2012, 04:58 PM | #15 | |||
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My muscles became weaker when I lowered the dose. Yesterday I tried going back to the full 60 mg dose, but every 4 hours. I did much better. I guess it wears off too fast and lowering it wasn't the right thing for me to do.
I saw the doctor today and he said that it was alright to take every four hours, but not to exceed 1500 mg. in a 24 hour period. He is going to put me on Imuran after some blood work -- a cbc and cmp, and he's sending me for a CT scan of my thymus. Even though he's a Rheumatologist, he's doing a far greater job than any Neurologist I've seen. I think I'll keep going as long as he can help. |
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11-20-2012, 10:38 PM | #16 | ||
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Quote:
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11-26-2012, 12:08 PM | #17 | |||
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Thank you all for your replies. Sorry I haven't responded, my eyes are blurry lately. I have a hard time reading anything. I've had a rough week because I had to move to another house. I wonder if I should up my dose even more when I do more work than normal.
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