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Old 11-20-2012, 05:49 PM #1
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Has any one ever had a crash were their body have become totally unable
To work not able move their body at all it's only happened to me once a year ago I wasn't able to lift a hand flopped to the floor for two hours of which I was totally carm it took my confidence away for awhile
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Old 11-20-2012, 08:56 PM #2
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I had one such episode while riding my horse. I am sure that I had over exerted myself, and I forgot my mestinon. It didn't work out too well. I was totally paralyzed and stopped breathing. I didn't feel scared. Just puzzled.

The nice thing about being a bit too fat. When I hit the dirt, I was well padded............

I am really careful now to take my mestinon before doing anything that is potentially dangerous.
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Old 11-21-2012, 06:09 AM #3
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I have had instances recently during the night where I have been totally unable to move my legs. It is as if they are completely paralysed and as I try to turn over in bed I must drag them or else lift them with my arms to move them. It's a horrible sensation and I worry that if it persists I may not be able to stand up. Fortunately its always come back again once my body is awake.
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Old 11-26-2012, 02:36 PM #4
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This past summer I ignored my symptoms and my grown daughter signed herself and me up for an exercise program. I made it through the first couple of sessions, but progressively became weaker. I think it was the third time I went when I collapsed on the exercise mat and couldn't move my lower body for a few minutes or so. When I finally did stand up my legs felt like jello. The instructor suggested I quit the class and try yoga.
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Old 11-26-2012, 03:09 PM #5
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Quandry did they not know that you had MG you may of been ok with very light exsersise how frightening that must of been
Wild cat my bed is for when I feel my MG is becoming bad sometimes I'm unable to move can't lift a arm or leg as if I'm being held down then after a hour or so get better its scary when it happens
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Old 11-26-2012, 05:49 PM #6
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Quote:
Originally Posted by Alan53 View Post
Quandry did they not know that you had MG you may of been ok with very light exsersise how frightening that must of been

Alan
I've been going through diagnostic hoops over the past ten years and finally got a diagnosis from a Rheumatologist, an unlikely person to diagnose me, but I tested positive for modulating antibodies. I chose to ignore my symptoms before the diagnosis hoping my symptoms would disappear...but they didn't.
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