This will be quick for now, though I have more thoughts.

In my family, gallstones are directly related to not enough stomach acid. You can have no symptoms to a lot of them. My Mom's belching and other symptoms were not alleviated by taking her gall bladder out. Only taking Betaine HCL, 12 years later, made her GI symptoms go away. And she had a low B12 too. Betaine is a very simple solution to no stomach acid as opposed to surgery.

Your low BP could also be a sign of Addisons.

DRAT!! I wanted an "easy" fix for something, ya know?!?!?! Something where I could just do ONE thing.....and not have to take another med for the rest of my life.

Won't they HAVE to do surgery IF I have stones??

Yeah, I thought about the Addisons -- with all of the salt I CRAVE!! But, my skin color is normal. Of course I could be one of the few without discoloration.

Thanks, Annie.

They may be able to take out your gallstones nonsurgically by going down your stomach and into your gallbladder with a scope thing. I was almost sure that I had gallstones, but I didn't. The symptoms went away on their own with no diagnosis.

Thanks, Celeste! As long as I'm "asleep" when they do it!

Were you having these symtoms before or after being dx with MG?

Hi Jana,

with the passing out you could have ncs (neuro cardiogenic syncope - fainting due to a drop in blood pressure on standing). Or it could be NMS which is neurally mediated syncope which is low bp causing fainting. Dont quote me on this my brain is a bit fuzzy on this and you would need to check the dinet site.

I would do the TTT poor mans version as soon as you are able and if you dont already have one get a BP monitor.

Keep a diary of how you are feeling and note what your bp is at the time. Remembering your brain will feel a drop in bp before its measured with a bp monitor and it can be up to 20 mins before your bp monitor will show a change in pressure. You can also have a normal BP but have poor cerebral profusion ( poor blood flow to the brain) and it can cause brain fog. Hence why with dysautonomia you can feel dreadful but still have a normal bp!

The good news is Mestinon (I cant remember if you take it apologies) is used in people with low bp and syncope (fainting) to boost their bp when standing. Mayo clinic discovered this and quite a few people on Dinet use mestinon - small world huh?

I hope this helps Jana

Hugs
Rach

YES, Rach!! It does help!! Many thanks!!

Hi Jana,

I'm glad my rambling posts are helping!

Weak leg muscles can also be a symptom of POTS or dysautonomia, so add that to MG and thats a heap of trouble!

As I say google Pots place or Dinet and you will find a wealth of info. Most people dont just have Pots the have other autonomic nervous system issues too and its all covered including mast cell activation disorder. They are a really friendly bunch and will answer any questions you may have.

If you are on facebook there are loads of groups on there too. A great blog on the subject of dysautonomia is one called Living with Bob.

Any questions please give me a shout hun!

Hugs
Rach

Jana, Your BP looks just fine. Not even a sign of over hydration or dehydration.

Green tea might cause more GI issues. So hold off until you've been thoroughly checked out! If it's alkaline, it might do more harm. Always try only one thing at a time or you won't know if it's helping or hurting.

Have you brought the "weaving" up to your neuro? Have you videotaped it? I think a neuro would be the one to run it by first, IMO.

With your migraine history . . . have you been looked at for any possible clotting disorders?

You have good doctors, so I'm sure they can help you figure this all out.


Annie

Thanks, Annie!