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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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12-05-2012, 09:36 PM | #1 | ||
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Grand Magnate
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Jana, Blood tests for clotting disorders like Antiphospholipid Antibody Syndrome are easy. APS is fairly common for MGers to have.
That's great you got in so quickly. I'm sorry you're having symptoms. You might want to ask them to test for pernicious anemia (parietal cell antibodies and intrinsic factor antibodies). Also, they can check stomach pH when they do an upper endoscopy but they have to think to do it! They really should figure out if you are producing acid or not or are producing a smaller amount. The prep isn't fun but the procedures are so quick. They might have to keep you in recovery longer, due to the MG. I had to do that. Any anesthetic drugs are harder to recover from. They can monitor both your ECG and O2. I also really hope they look for signs of celiac disease in the small intestine. Whatever is going on, I hope you find answers and can stop this from happening. How exhausting to not be able to eat without symptoms! Annie |
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"Thanks for this!" says: | jana (12-06-2012) |
12-06-2012, 12:17 PM | #2 | |||
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Quote:
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~jana |
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12-08-2012, 09:47 AM | #3 | ||
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Hi Jana,
Im so glad you have found a Dr that knows what they are talking about and isnt trying to fob you off! I hadnt heard that gastroparesis can be an issue in MG - so I guess you learn something everyday. It makes sense though as a lot of people refer to the stomach as a muscle. Really hoping everything goes well Rach xx
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Diagnosed with: Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa And Myasthenia is still a possible diagnosis depending on which Dr I see. My blog address is . . Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can, And the wisdom to hideThe bodies of Doctors I shot When they said,"You're perfectly healthy, It's All In Your Head." |
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"Thanks for this!" says: | jana (12-08-2012) |
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