Magister
Please speak with your doctors about receiving IVIG and having IgA deficency. I know there can be a increased risk of allergic reaction. You can google about it.I think they can give it without the IgA in it but please speak to your doctors about it.Just a heads up for you so please discuss this with your doctors.

Many thanks everyone
 

many thanks everyone for support. Yes anti iga antibodies are one of the main concerns about my treatment. Seeing various doctors and possibly ivig next week.
Regards
magister

Maybe I am a bit confused here, but wouldn't IVIG help if you have low antibodies? Isn't adding in good antibody that is not contaminated with myesthenia garbage the whole idea behind IVIG?

Immunoglobulin = antibody. Isn't that right?

I hope that I am right and that it will help. Somebody? Ideas here?

Celeste, These articles might explain it better. Someone can have a deficiency of IgA but also have anti-IgA antibodies, meaning that the body would mount an attack against incoming IgA. Make sense?

They can filter out IgA in IVIG but it's such a "rare" situation that unless you ask, Magister, they might not do it. The reaction could be an anaphylactic reaction or nothing or somewhere in between.

http://www.uscnk.com/directory/anti-...ibody-3023.htm

http://primaryimmune.org/about-prima...iga-deficiency

Magister, I hope your docs know what they're doing! They had better try IVIG in a hospital setting. This is nothing to mess with.

Annie

That makes sense. Thanks for clearing that up.

Good News IVIG
 

Hi Everyone,
Good News.
Had 2 days of high dosage IVIG at local hospital. Total of 160 grams low IGA IVIG as out paitient. Went well despite chaotic organisation and waiting for pharmacy for 3 hours to provide prescription on first day. On first day I had quite strong MG kickbacks. Today I had much less and completed course at 20 grams per hour instead of previous inpatient treatment at 4 gms per hour.
Careful monitoring plus slow and gradual increase and hydrocortisone plus antisickness seemed to work well with no sign of anti-IgA antibody reaction.
MANY THANKS EVERYONE FOR SUPPORT.
MAGISTER