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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-29-2012, 12:08 PM | #11 | ||
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Junior Member
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Magister
Please speak with your doctors about receiving IVIG and having IgA deficency. I know there can be a increased risk of allergic reaction. You can google about it.I think they can give it without the IgA in it but please speak to your doctors about it.Just a heads up for you so please discuss this with your doctors. |
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11-30-2012, 12:38 PM | #12 | ||
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Quote:
Regards magister |
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11-30-2012, 04:26 PM | #13 | |||
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Maybe I am a bit confused here, but wouldn't IVIG help if you have low antibodies? Isn't adding in good antibody that is not contaminated with myesthenia garbage the whole idea behind IVIG?
Immunoglobulin = antibody. Isn't that right? I hope that I am right and that it will help. Somebody? Ideas here?
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Celeste |
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12-01-2012, 12:36 AM | #14 | ||
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Grand Magnate
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Celeste, These articles might explain it better. Someone can have a deficiency of IgA but also have anti-IgA antibodies, meaning that the body would mount an attack against incoming IgA. Make sense?
They can filter out IgA in IVIG but it's such a "rare" situation that unless you ask, Magister, they might not do it. The reaction could be an anaphylactic reaction or nothing or somewhere in between. http://www.uscnk.com/directory/anti-...ibody-3023.htm http://primaryimmune.org/about-prima...iga-deficiency Magister, I hope your docs know what they're doing! They had better try IVIG in a hospital setting. This is nothing to mess with. Annie |
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"Thanks for this!" says: | southblues (12-01-2012) |
12-01-2012, 09:38 AM | #15 | |||
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That makes sense. Thanks for clearing that up.
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12-14-2012, 02:31 PM | #16 | ||
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Hi Everyone,
Good News. Had 2 days of high dosage IVIG at local hospital. Total of 160 grams low IGA IVIG as out paitient. Went well despite chaotic organisation and waiting for pharmacy for 3 hours to provide prescription on first day. On first day I had quite strong MG kickbacks. Today I had much less and completed course at 20 grams per hour instead of previous inpatient treatment at 4 gms per hour. Careful monitoring plus slow and gradual increase and hydrocortisone plus antisickness seemed to work well with no sign of anti-IgA antibody reaction. MANY THANKS EVERYONE FOR SUPPORT. MAGISTER |
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"Thanks for this!" says: | AnnieB3 (12-14-2012) |
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