[Anacrusis]

In the beginning, the eye would be like a camera lens having problems to adjust the picture sharpness of an image quickly - so it was in and out of focus every few seconds.

Then summer came and the horizon stayed really blurred for most of it. But on taking Mestinon the image would be sharp with each trial dose. I changed reading glasses as well and much to the surprise of the optician needed yet a new pair after only 2 months. With Mestinon I could actually go back to the 2 year old glasses again.

Now since about a month Iīm checking and re-checking many times outside my house but the horizon is extremely clear all the time - I can see for miles again like I always used to, and also without the Mestinon.

Do you have long or short fluctuations with your type of vision problem or is the problem quite stable?

[4-eyes]

Mine has always fluctuated all the time. That's pretty normal with MG.

[jana]

My vision changes ALL the time -- even from morning to night. I've had pretty bad double vision since last fall. This summer, my vision would sometimes be "single" (normal) early in the day.

I think the first sign of double vision is often BLURRY vision. Also, you sometimes get double vision in only ONE direction. For instance, for a couple of years I had double vision ONLY when looking UPWARDS. Like if I was looking in the mirror and doing something to the top of my hair, I would see two images. The rest of my vision was mostly normal until last year.

Now that I wear the stick-on prisms, I seldom think about it. I do see TWO images at night (looking at the alarm clock), after taking off my glasses. I just roll over, close my eyes, and go back to sleep.

[Alan53]

Double Vision was all I had for the first 7 to 8 months oh and droopy eye lids but I didn't know that at the time never had any blurry vision but were talking MG so I'm sure you can mine varries from mild to severe and I only do my reading in the morning as I know I will be better sometimes when out its like I only see in snap shots it's never that stable or constant
Alan

[alice md]

What you are describing sounds more like problems in accommodation and not double vision.

This is a less common ocular manifestation of MG, but has been described.

I am glad that this seems to have resolved together with other MG symptoms and hope it stays that way.

[Anacrusis]

Alice

Iīve had the double vision where the kids I teach all had 4 eyes! –
Odd because you think they can all tell you are seeing double and of course they canīt!
But the blurriness did happen way more often and for longer periods.
It sounds like Jana would settle for gallstones and I would be quite happy to settle for accommodation!!!!
BTW: Iīm still baffled at the continual improvements especially as just a few weeks ago I was sure it was all about to all go downhill.

Thank you for those good wishes.

Alan

Are you taking medication? Do you notice that helps?
Seeing inīsnap shotsīis an interesting way to describe your vision.

Jana

So another question......Does your eye sight ever fluctuate back to a minimal amount of visual problems?
I mean do you have periods of some days where you donīt actually need to wear the prism glasses?

Thanks,


Anacrusis

[jeatak]

I have both near and far distance problems that vary depending on the time of day and also from day to day. Mestinon does not help very much with my vision problems. I can see fairly well in the morning and my vision gets more double throughout the day. I wear a prism on my Right eye glass lens that is quite helpful.

[Alan53]

Anacrusis
I was on steroids for the first year which did improve my vision I no longer drive as I now have a fear of being in a car even a bus due to always seeing things come at me which even thou I know isn't real
I'm not on any medication mestinon never really helped me
It's only in the right eye
Alan

[Anacrusis]

Thanks Quandry, Jana, Heat Intolerant, Jeatak and Alan

These are exactly the nuances of fluctuations and fine details I was interested in......

Nice experiment Jana! - I can just picture you swiveling around and around until you get the answers you are looking for!!!!

Heat Intolerant - I hope you donīt mind but I smiled a LOT when I read yours!

[jana]

Originally Posted by Alan53

Anacrusis
I was on steroids for the first year which did improve my vision I no longer drive as I now have a fear of being in a car even a bus due to always seeing things come at me which even thou I know isn't real I'm not on any medication mestinon never really helped me
It's only in the right eye
Alan

YEP!! You reminded me...............before I got prisms I was riding in the front seat one day, my sister was driving (she is an AWESOME driver). I was SOOOO nervous.......I kept on thinking cars/trucks were about to HIT us -- especially on the 4 lane when someone would pass us then return to our lane. I actually SCREAMED a couple of times! After that, I sat IN the back seat til I got prisms.

Yeah, from what I've read, Mestinon usually doesn't do much for eyes.