NeuroTalk Support Groups - Burst of Energy

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)

- - Burst of Energy (https://www.neurotalk.org/myasthenia-gravis/180650-burst-energy.html)

My neurologist increased my Mestonin from 30 mg to 60 mg which I started today. My legs have held me good all day but I feel jittery and my left bicep has some muscle fasciculations most of the day. Anybody ever experience that?

Quote:

Originally Posted by Lesmom96 (Post 937702)

I get muscle twitches sometimes. If you are doing better, you might want to stay with the higher dosage because it may get better. Mine did. I used to have a lot more problems with mestinon.

Quote:

Originally Posted by Lesmom96 (Post 937702)

I had a lot of that when I first started mestinon and also when the dosage was raised from 30mg to 60mg. After a week or so almost all of that stopped.

Quote:

Originally Posted by uncledave (Post 937193)

I was diagnosed with MG about 6 months ago. I'm still in the process of determining my proper dosage of Mestinon. My neuro told me to experiment, so here goes. One of my main symptoms has been an inability to walk any distance without having to sit down and rest a little before continuing. I had started using a wheelchair for shopping. Starting on 1/2 tablet 4 times a day helped my walking quite a bit. Now I am on 1tab, 1/2 tab, 1 tab, 1/2 tab each day. This helps even more. Two days ago I experimented and took 2 tablets at once. There was a BIG improvement in my symptoms. Not only could a walk a longer distance but I felt ENERGISED! I walked energetically! I walked so much that my calf muscles are still somewhat sore. I can understand how the Mestinon improves strength, but my question is do any of you also experience a surge of energy with the correct dosage?

Hello,

Your post is very interesting to me. I am a new member and I could not find out how to post so I am just butting into your post and hope you understand.
I am in the process of being evaluated for MG and I am anxiously waiting for the blood tests results. I have the same walking symptoms you have. I have been using a walker with a seat so that I can sit when I need to. Any advice you can give me about how to navigate this site will be a big help! Have you previously posted about how your symptoms began and the course of your being diagnosed? Thank you so much. Alle Wood

Quote:

Originally Posted by AlleWood (Post 938071)

Hi, I sent you a private message but forgot to give instructions on how to post. Simply go to the very beginning of the myasthenia gravis support group, the page where so see all the various posts like mine. Toward the top there is a "new thread" or "new post" button. Simply press it and you will be ready to enter a brand new post. Hope this helps, and thanks for your reply.