NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)

- - Tired (https://www.neurotalk.org/myasthenia-gravis/180826-tired.html)

I've only started pursuing a diagnosis for the past ten years but a friend reminded me recently of a time, about twenty years ago when I worked as a house cleaner. The job was more labor intensive than I was used to and I was exposed to a lot of chemicals. After work when my friend would talk to me, my head would fall forward, and I'd fall asleep. There were times that I'd even fall asleep while eating dinner. I was so exhausted and looking back on it now, I think not only the use of muscles was my problem, but the exposure to chemicals. I was only able to work at this job for about a month.

Quote:

Originally Posted by Stellatum (Post 938314)

Barbara,

If you're not doing it already, I highly recommend detailed journalling. I thought I was keeping track of triggers and such, but I was really surprised by what I discovered. I rated my symptoms every day on a scale from one to ten, and also my level of activity, again from one to ten. Then I made a line graph (OK, I'm a nerd, I really like graphs!). I was surprised to find out that my activities were affecting me much more than I'd realized--but that there was a one- or two-day delay. In other words, a busy day on Monday will knock me out on Tuesday or Wednesday. I think for some MGers, it's even Thursday.

Abby

My symptoms too are variable and I believe I have delayed fatigue as well, but I have not been journaling so I can't go back and look at trends. I will start this today. My husband has been encouraging me to do this for a few months and bought me a nice journal that has everything from weather, weight, meds, activity, body functions and diet to track but I was resistant to using it. Thank you.