Have been in holding pattern since Nov 1 waiting for insurance to approve monthly maintenance IVIG and today they came back and said
"Patient has been denied for IVIG; Information received does not show that patient meets criteria for Ig replacement therapy. Aetna considers the use of IVIG for Myasthenia Gravis maintenance experimental and investigational. A letter will be generated within 24 business hours and it will include peer to peer and appeal instructions. It will be mailed to the patient and to the prescriber’s office. "

My doctors office already sent a letter of medical necessity that I thought was very persuasive as to necessity, said I needed it to avoid incapcitating disability and included my doctors very impressive credentials and recognition as expert international expert with 20 years experience. Letter also said I have been ftreated by his office and I had MG confirmed by clinical diagnosis and SFEMG

This is all new to me. Now they want me to wait a week to get a letter explaining what choices I have meanwhile my condition has been deteriorating (not to ICU because I wont do anything that would bring that on but maybe I should take brisk walk for 30 minutes so I collapse???)

Any insight, advice, help on what I can do to get the monthly IVIG approved. I definitely had improvement from it. Thanks in advance.