NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)
-   -   Eyelid surgery? (https://www.neurotalk.org/myasthenia-gravis/181069-eyelid-surgery.html)

4-eyes 12-15-2012 12:57 PM

Well, it would for sure give you a chance to see what it would be like and you could try different "tensions."

Years ago I was going to have a family photo taken, as I was having a "good phase." I have MuSK MG, so I mostly have above the neck issues. I was fine until we got to the studio, when my face more or less "melted." I used a tiny strip of adhesive tape to pull up my right eyebrow, covered that with my bangs, and did the photo before my eyes started crossing. What a day...but it worked.

Good luck!

southblues 12-15-2012 01:08 PM

I told my eye doctor that I was considering duct tape. He seemed to think that was extreme. :)

Juanitad 12-15-2012 02:00 PM

I met a woman in the infusion center with mg who had an eyelift before she knew she had mg. Her lids were sagging badly and she just thought it was cosmetic. When she was finally diagnosed and started treatments, her eyelids tried to settle in the proper place but couldn't. She always had a very surprised look on her face and her eyebrows were in the middle of her forehead. Not an attractive look! However, I don't think the surgeon would have done so much if he had known it was mg, not just an age issue!

southblues 12-15-2012 02:08 PM

That kind of story does worry me. I think that is the type of thing my doctor is trying to avoid. His partner actually was the first person to say that I had MG.

Geode 12-16-2012 11:17 PM

I know of 3 different approaches, there may be more.

1. Blepharoplasty - removing excess skin and fat from the eyelid so it is not as heavy for the muscles to lift.

2. Levator resection - they shorten and tighten the levator muscle that lifts the eyelid. I think this is what might cause the failure to close completely. There is also something called an internal levator aponeurosis but I don't know how that compares.

3. Frontalis sling - they attach a sling from the inside of the eyelid up to the forehead. This surgery would be reversible if there's a problem. I have considered asking about this, but I'm afraid my forehead would tire and limit the success of this approach.

Here's an article if you're interested

http://www.aao.org/publications/eyen...derForPrint=1&


All times are GMT -5. The time now is 10:30 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.