[grannyruby]

hi, new here, have a question..my mother ia a 75 year old lady, diagnoised in Sept with MG..all the sign from head dropping to double vision..Three day in a row, she has woken up in the morning..by the time she gest into the kitchen..10 minutes..she starts jerking from head to toe..tremors so bad i have had to get a grip around her and hold on so tight til her body stops..makes you think some one has parkensons..its awful..when it has happens it takes her down..anyone else ever do this. one thing she was on mestinion, had to take her off back in oct..side effects bad..for six wks she has been on cellceft..and actually sun to now she has been able to hold her neck up by herself..still wears a collar, tho..any input would be helpful..its awful to sit and have to listen to yr mom cry with pain so bad..

[4-eyes]

Hi,

Jerking, painful tremors are not an MG symptom. She needs to be seen by her doctor. Also, although this sounds cruel and insensitive, if you could get a short video of the episodes, it might help a great deal when you speak with the doctor.

So sorry this is happening. MG is tough for everyone, but something about an older person dealing with this really hurts my heart.

[Geode]

Yes, a video would be a good thing to have. And a doctor visit. Do you think she could be jerking and having tremors from sheer exhaustion from the effort of traveling from bedroom to kitchen? Some kinds of involuntary jerking are called myoclonus, you could Google it and see if that's close enough to what your mom is experiencing to ask your doctor about.