FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
|
12-16-2012, 02:58 PM | #1 | ||
|
|||
Junior Member
|
Has anyone experienced any long term improvement from plasmapheresis treatment? Beyond 1 month
|
||
Reply With Quote |
12-16-2012, 03:30 PM | #2 | ||
|
|||
Member
|
Hi and welcome to the group.
I hope someone else chimes in here with an answer to your question; I've only had plex once and it was to reset me in the midst of a crisis - it worked wonderfully for me, but I'm not on ongoing plex therapy. Didn't want you to think your question was going ignored here Cheers, Brian |
||
Reply With Quote |
12-16-2012, 05:19 PM | #3 | |||
|
||||
Member
|
I have one exchange every 5.5 weeks (once every month + one week...) and that´s what keeping me in good shape even though I´m tapering Pred (10 and 6 mg on alternate days). That is why I´m cautious but I will go for 6.5 maybe 7, week cycles in the next future.
Maurice. |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Plasmapheresis Treatment 5 | Myasthenia Gravis | |||
plasmapheresis | Myasthenia Gravis | |||
Plasmapheresis question | Myasthenia Gravis | |||
Plasmapheresis cost | Myasthenia Gravis | |||
New Plasmapheresis tx | Myasthenia Gravis |