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Old 12-26-2012, 03:28 PM #1
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I am behind on my emails but saw I had received article about new drug on 11/26/12. (sort of like italian dessert maybe some sweet news for all of us!)

http://www.bizjournals.com/sanfranci...ravis-als.html

Anyone else hear anything about it?
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AnnieB3 (12-27-2012), Lesmom96 (12-26-2012), southblues (12-26-2012)

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Old 12-26-2012, 03:33 PM #2
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I haven't heard of this before. It is good to know that somebody is doing something. Thanks for the link.
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Old 12-27-2012, 01:38 AM #3
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Steph, Thanks for sharing that article.

I've heard of it but I'm very cautious about it. The therapy is directed at motor neurons (ALS) and has a "downhill" effect on the muscles. It's hard to say if all MGers would benefit or not.

The initial results are promising and it would be great if more MG drugs were available. I had hope for Monarsen too and that had a LOT of backing and orphan drug status. It's still not available.

Any progress is good.

Annie
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Old 12-27-2012, 09:37 AM #4
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Right. At least somebody is doing something.
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Old 01-03-2013, 10:32 PM #5
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That's definitely a start!
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