Thank you for all this inspiration! It is also interesting that looking for these truths can change and become fragmented
depending not only on personality but also which type of doctor you visit.


Take my pick......!

When at the physiotherapists my answer was said to lie with a neurologist
When at the neurologists I was told to find my way to a gym!
When visiting the doctor the diagnosis was supposedly to be found at the psychologists
When at the homeopaths, my answer must surely lie with the mineral supplements offered compatible with my symptoms
When at the alternative doctors the only path for me appeared to be the one using energy healing
When I, as a ´diagnostically confusing patient´ .....then my search for truth might very well lead me to a forum like this!

But when I traveled to a different country where new truths providing better alignment could be accessed via different medicinal cultural perspectives an MG researcher & neurologist told me the answer was atypical seronegative myasthenia going into remission....I had come full circle back to my own original suspicion all those years ago.....

In the end it really is we who know, - or at least I should say we know when something isn´t quite right
about another´s perception of how we are experiencing our own symptoms and what they might mean.

wild_cat,..…thank you for your reply, you inspire me to remain truly inspired - no matter what

Anacrusis

PS
BackwardPawn, I don´t think anyone means folk shouldn´t get psychological help when they need it, not at all. I think that it´s just the diagnostic phase like you, that we are a little frustrated with.

I wonder what kind of personality combination (patient and physician) creates a situation more conducive to a psychosomatic diagnosis?

I have often questioned whether there is something in the way I come across that leads physicians to think this, rather than something else. I'd be really interested to know, if that is the case, what it is.

I agree with you that there may be a certain cultural bias towards dishing out a psychosomatic diagnosis. Certainly when I was in Iceland no doctor for a second suggested my symptoms were psychosomatic. It's just unfortunate it would have cost me the price of a house to receive assessment and treatment there.

BTW, if I remember correctly, you had one negative blood test and a negative SFEMG.
That does not necessarily rule out MG!

I think you just have not yet had a good opportunity to meet with a competent specialist, and once you do, I think you may question your own disposition much less! One brief hour long appointment with an outstanding neurologist felt like
I achieved more in that one hour than I did during 2 long years with an incompatible doctor.

The pieces of your puzzle that are just annoying to the wrong specialist will feel like they are all falling into place quite effortlessly the minute you are sitting in front of the right one.

I think I´m getting a better idea of doctor/patient combinations the more practice I get.
But wouldn´t that make for interesting study?!

Wild_cat…..I just read about a well known sports personality he had been out sick for many months, from a so called ´mystery illness´ due to a virus as stated by the national paper – although doctors say they found no evidence of any virus whatsoever, nevertheless, this was most likely the cause of his illness!
Hmmmm…Let´s see…….......Perhaps you are just in the wrong..... profession!!!