Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 02-16-2013, 06:52 PM #1
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limpy limpy is offline
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Join Date: May 2012
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limpy limpy is offline
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My local neurologist thought he was doing the right thing by sending me out. He had not gotten a diagnosis yet and was afraid for my life and was not too proud to say that he was in over his head. He had done his homework by doing the Lems test, even though it did not come back right away. He had no idea that I would be treated as I was or he would have never sent me there. He apologized to me profusely for what happened.

He had me on prednisone and as much mestinon as he thought was safe and the Emory team did not think I should be on any of it.

To my knowledge, the folks at Emory did not perform a LEMS test, but if they did, it should be coming back to them by now.
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