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Old 01-10-2013, 05:32 PM #1
4-eyes 4-eyes is offline
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Join Date: Aug 2009
Posts: 642
10 yr Member
4-eyes 4-eyes is offline
Member
 
Join Date: Aug 2009
Posts: 642
10 yr Member
Default One of our forum members has passed

One of our own, known as “justdeb” died today. She hasn't been very active on the forums the last several years, and in early years would oftentimes find herself in controversy, because she was nothing if not strong willed.

I met Deb online 11 years ago. We began instant messaging and spent many hours discussing MG, treatments, symptoms as well as religion (she the zealot, me the skeptic), education, pets, food and most of all family. Our children are all similar ages, so there was never a shortage of topics to discuss there.

Shortly after receiving an MG diagnosis, Deb began having new symptoms which were eventually diagnosed as MS. This was devastating news and Deb fought hard. She had many, many complications as well as other health issues and finally became homebound for the last several years.

Our friendship deepened during the years, and we freely discussed the scariest outcomes that can come from such serious illness as MG and MS. We went through ups and downs. When I told her that I was going to do the reboot she was supportive and joked to me, “You try it first and if you live through it, maybe I'll give it a go.” She was in constant phone contact with me when I was in the hospital and after. The love was palpable.

Unfortunately, when she went to seek her reboot, it was determined that her body was too weak, and she was not a candidate. She began having more frequent issues, some due to MG and some not. In August of 2012 she had brain surgery due to an abscess that had formed. She was left in ICU with paralysis, pain and was dependent on a vent from that point. She still, however, had her mind and her will, and made the decision to be removed from the vent and let nature take its course.

As happy as I am that she is free, and no longer enduring the immense discomfort she suffered, I also feel a great sense of loss, knowing I will never hear her voice or see the IM screen pop up with her ID on it again. I am REALLY going to miss her.

Rest well, Deb. Your job is now done.
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