Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 01-20-2013, 11:53 AM #20
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
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Today I feel like I have Plain Old MG. Yesterday, I got up early and took my kids to a special Mass in a city I'm not familiar with. Then we stayed for the reception, where I was having such a good talk with a friend that I didn't want to interrupt it to tell her I had to sit down. Then we got home and I baked and decorated a fancy cake for my daughter's birthday. Then we went to a friend's house for dinner. Usually, I would only do one of those things on any given day, and not all three. By 10:00 I was in a state of utter, utter exhaustion, and had to be helped upstairs.

This morning my first try at sitting up in bed failed. My arms are tiring quickly as I type this, and while I don't have double vision, it's a strain to keep my eyes focused (hello, Mary Walker phenomenon). I hope that next time I start questioning whether activity is a trigger for my weakness, I'll remember writing this.

Meanwhile, my daughter's birthday dinner menu has changed from home-made cheddar-broccoli soup and rolls to take-out Chinese, I'm playing hooky from church, and I've decided to wait until the laundry reaches critical mass, thereby obliterating itself in a nuclear explosion before I have to deal with it. I hope that the rest of you can find a way to rest, too! And thank you so much for talking this through with me. Not only do I get excellent information and leads, but it helps me to sort out my own ideas.

Abby
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