[seishin]

This has been a long holiday weekend.... I don't yet have a diagnosis but here's my symptom history:

fluctuating ptosis (droopy eye) -- 41+ years (since at least age 3)
difficulty breathing /severe shortness of breath when exercising -- 19-20+ years
racing heart, extremely elevated heart rate (200+bpm) when exercising -- 19-20+ years
(Note: was diagnosed with ‘Exercise-Induced Bronchospasms not associated with asthma’ Aug 2011)
memory loss -- many years
muscle spasms/tightness in leg that wouldn’t release or relax (right now seems fine) -- 3-4 years
severe lower back pain -- 3-4 years
sleep apnea (suspected) -- 1 year or less
increased sensitivity to noise -- 3-4 months?
fasciculations on monitor during cervical decompression therapy (actuator tension works to create defensive contractions 30 milliseconds ahead of the body. Whereas a typical bodily response is for the line to become steady with relaxation, mine became extremely erratic the more I relaxed -- June-July 2012)
pitting edema in legs & face -- first noticed after working out 2 mths ago or so

mid-Oct 2012, I started using Whole Body Vibration Machine to try & reduce pitting edema. Machine is also known to ‘tone muscles’. I believe it triggered excess muscular fatigue which led to the sudden addition of multiple symptoms:

bruxism (teeth grinding) - broke off a crown, loosened a tooth & 2 other crowns (have started using mouthguard) -- Oct 2012
choking -- most recently during last 2 weeks
imbalance -- during last 2 weeks
urinary incontinence round the clock -- during last 2 weeks
worsening of shortness of breath -- during last 2 weeks
hearing worsened -- noticed it during last 2 weeks
blurry vision -- noticed only 1-2 times during last 2 weeks
aspirated saliva & liquids multiple times -- during last 2 weeks, 8 incidences
regurgitating into oral cavity -- last 2 weeks
arm, shoulder & hand weakness & pain -- 2 weeks for arm weakness, ache since Nov 24
leg weakness & muscles burning sensation -- noticed 1 week ago
substernal chest pain with chest pain flaring up when lying on left side -- since Nov 21 or 22
excess saliva & drooling -- since Nov 21 or 22
pain in back of neck -- since Nov 23

My mom had four (known to me) Autoimmune Diseases, I have three known with MG being the 4th if it is diagnosed. And I know those with vitiligo & Hashimoto's and severe B12 deficiency are inclined toward myasthenia when collecting add'l Autoimmune diseases via what I've read about Type 3 MAS or PAS 3C.

Long intro. Anyway, my point....

I went to the E.R. Black Friday, concerned about myasthenic crisis (because of chest pain & 7 (at that count) incidences of aspirating fluid in 2 weeks). Internet & BCBS nurse said I should go so I did. The *edit* of an E.R. doctor accused me of being a hypochondriac & said I've spent too much time online. *edit* ever. Anyway, I left after he refused to do any MG-detecting tests other than acetylcholine AB which takes a couple business days for results. Meanwhile, I was sent home. My concern: despite resting pretty much round-the-clock, the chest pain continues & becomes near constant if I lie on my left side. The pain also shifts from the center of my chest more to the left side. Should I be concerned? Do I need to go to the E.R. again despite the likely repeat poor reception & financial expense? Am I being stupid to think I can wait until tomorrow to finally speak with my doctor & other health professionals who were absent during this frustratingly long holiday weekend?