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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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01-19-2013, 12:21 PM | #11 | |||
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My Neuro's left me on Mestinon while trying these other drugs. Mestinon has a short life (3-4 hours) and these other drugs (Imuran and Cellcept) are long term drugs and usually take 6-12 months to kick in.
Mike |
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"Thanks for this!" says: | Quandry (01-19-2013) |
01-19-2013, 03:38 PM | #12 | ||
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Grand Magnate
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Quandry, Immunosuppression is a huge risk for those with such a high incidence of cancer in their family, especially with family members such as parents or siblings with cancer.
Mike, Life is a huge risk but taking a cancer risk when you don't have to, especially in a situation like Quandry's, is playing with fire. I know that some patients, with MG or lupus or any other autoimmune disease, often don't have a choice because they wouldn't be alive otherwise. I hope you don't ever get cancer. Quandry, You can always ask to be referred to a hematologist for a 2nd opinion on what they think about your cancer risks. In fact, that might be a very good idea given your family's history. Sometimes it helps to talk to the cancer experts about it all. Hematologists are trained as oncologists. I hope you can find a treatment that works for you. Annie |
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"Thanks for this!" says: | Quandry (01-19-2013) |
01-21-2013, 04:05 PM | #13 | |||
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I went the doctors today and discussed my fears with him about taking Imuran and he said he doesn't want to give it to me if I feel uncomfortable about taking it. He said he's worried that the Mestinon may not be as affective if I keep taking it, and he also gave me a list of other immuno-suppressants to look at to see if I'd be more willing to take them instead. They are as follows: Cyclosporine, Cellcept, and 6-Mercapto Purine. So right now, he's going to keep me on the Mestinon. Does Mestinon become less effective over time?
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