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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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12-21-2013, 02:36 PM | #21 | ||
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I really should get a medical alert bracelet. Between the two diseases I have, I need prednisone, valium, mestinon and oxy or I'll end up in severe withdrawal and then die of adrenal insufficiency or suffocate.
I was thinking of getting either a bracelet or dog tag with the conditions engraved and the I need. Then having a card in my wallet with the full list. I think a dog tag would fit more info engraved on it. There is a service that gives you a bracelet with an ID number and the medic can look up the ID number and get everything online. I'm afraid they won't take the time, though. |
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05-01-2019, 07:51 PM | #22 | ||
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Newly Joined
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Hey, to anyone who is wondering, the best position I have found for MG patients is the Semi-Fowler’s position which is half-way between sitting and lying and it’s usually used during respiratory distress to attempt to improve breathing, whether that be with or without a ventilator.
Maya |
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08-25-2019, 02:05 PM | #23 | ||
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Junior Member
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Quote:
Currently I am on hold because I am newly diagnosed with Generalized MG and currently taking Mestinon but I know at some point I will be on Prednisone and possibly Imuran. Once I am taking meds more consistently, I’d like to put my name, diagnosis, meds I am taking and emergency contact person. |
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10-21-2019, 11:55 AM | #24 | ||
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New Member
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The position to put people in - called sitting up, is called "Fowler's Position". If you are semi-reclined, it is called "Semi-Fowler's Position".
People who have COPD are frequently placed in this position to ease breathing. The condition of having trouble breathing when lying down (supine, for example) is called "orthopnea". Earlier in the thread, someone was looking for a C-word related to this. COPD patients do better in Fowler or Semi-Fowler position, I understand. That might have been the C-word . Hope that helps. |
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