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-   Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)
-   -   E.R. Mishandling (https://www.neurotalk.org/myasthenia-gravis/183107-mishandling.html)

seishin 01-30-2013 06:13 AM

Thanks, everyone. :p

Alice, your post was especially moving for me. You and Annie both have such a positive impact on the group with your medical knowledge, intimate understanding of MG & enthusiasm for helping the rest of us better understand & manage MG. We're so fortunate to have you on the boards.

I want to clone you....:Crowded:

Tracy9 01-30-2013 11:53 PM

That is amazing news...!!!

Please be sure you know your numbers on the breathing tests. When I went to the ER earlier this month, my FVC was just under 1. My NIF was 28.

I just want you to know that getting 5 days in a row of IVIG can often lead to aseptic meningitis. I just got over that, too. If it happens, a dose of IV Decadron can stop it in its tracks. You want to make sure you get some IV Solumedrol before the infusions, as well as Benadryl and Tylenol. I would take 800 mg of Ibuprophen (my neuro says it is much better than Tylenol) round the clock throughout and at least for 48 hours after the IVIG. Hydrate a lot, and hopefully you'll be okay.


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