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Thanks, everyone. :p
Alice, your post was especially moving for me. You and Annie both have such a positive impact on the group with your medical knowledge, intimate understanding of MG & enthusiasm for helping the rest of us better understand & manage MG. We're so fortunate to have you on the boards. I want to clone you....:Crowded: |
That is amazing news...!!!
Please be sure you know your numbers on the breathing tests. When I went to the ER earlier this month, my FVC was just under 1. My NIF was 28. I just want you to know that getting 5 days in a row of IVIG can often lead to aseptic meningitis. I just got over that, too. If it happens, a dose of IV Decadron can stop it in its tracks. You want to make sure you get some IV Solumedrol before the infusions, as well as Benadryl and Tylenol. I would take 800 mg of Ibuprophen (my neuro says it is much better than Tylenol) round the clock throughout and at least for 48 hours after the IVIG. Hydrate a lot, and hopefully you'll be okay. |
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