NeuroTalk Support Groups - A few questions for those of you who have MG

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- - A few questions for those of you who have MG (https://www.neurotalk.org/myasthenia-gravis/183146-questions-mg.html)

So are you saying that chronic lyme disease can cause MG?

Quote:

Originally Posted by Tracy9 (Post 953103)

A TON of people who have Chronic Lyme and have a lot of issues from it are finding out they were bitten as children, have had it for years, and may have had unexplained symptoms related to it without knowing it. Also, a lot of people have it lay dormant for decades and then it is triggered by a pregnancy, car accident, surgery, or another bite and comes out full force.

Many times we have no idea we were even bitten. Testing is inaccurate, but there is a new test available at Advanced Labs that is more accurate. You can also at least get tested but make sure you get a Western Blot, and review the results yourself. One of the reasons it's so innaccurate is that they don't read them correctly.

It's worth testing for. My symptoms started 10 months postpartum. Where would I get tested? My fear is that if I go to lyme doctor they will tell me I have it even if I don't test positive. I don't want to take any medication that could make me worse.

Just something to keep in mind: one of the antibiotics used to treat Lyme is doxycyline, which is listed as a drug that can cause or worsen symptoms of MG: http://www.mginc.mb.ca/docs/MG_DrugList_Final-1.pdf

That said, I had Lyme a couple of years ago--not chronic, but a case that showed up a week or two after a tick bite (I had a bulls-eye rash, fever, and body aches). I took doxycycline because I didn't know any better, and neither did my internist. It didn't make my MG worse. As far as I know, it cured the Lyme--I was fortunate to catch it right away. I haven't had any fevers or body aches or joint pains since.

Abby