In the few months I´ve been reading on the forum it´s been interesting to hear about what sometimes presents before MG:

H1N1/other virus
M.E.
Guillain-barré
Lyme disease

I wonder what percentage of patients presented with MG as their´first disease´

(And if the´partner´diseases that usually accompany MG come before/during/after the MG)


Anacrusis

bny, What's to be sorry for? When you have MG, every day is a long day and that might happen even before noon!

The signs of C-Diff are so obvious that you can usually get help soon, so don't be scared of it. Mine went untreated for nearly 3 weeks (long, stupid story) and my ESR was 104 before I got help. BAD ER doctors.

I'm glad you got better on all of those meds. I remember the meningitis but not the drugs you were given.

Annie

That's interesting. it also wasn't my first. I've had hashimoto's (auto immune slow thyroid) for 2 years, doc told me to take more meds, I did and got hyperthyroid. That gave me weird feelings in my throat, gave me weightloss and more. So they decided not to test my thyroid but to take my tonsils out. I got valium for the operation (they said I was anxious, but I wasn't: the hyper thyroid gave me symptoms like high heartrate and stuff).

I'n sure the valium got my MG to wake up. I've never felt normal again, and I took 2 days to get out of the narcosis, which for such a simple operation normally lasts for 2 hours. [and it took another year to figure out it was mg]

Is there someone with mg as their first disease?

I had Graves disease, in and out of remission, for 13 years before the MG popped up. Had a big Graves flare in the spring and treated it with thyroid suppressants. In the fall, my five kids at home came down with H1N1. After taking care of them for two weeks, I had my first noticeable MG symptoms. I never really got the flu, but I had deep body aches for a couple of days--I felt like I was fighting it off.

Abby

It's my first, and so far, only. I did have a baby a year before my symptoms started but that's not really considered a "disease."

That may be open for debate..................

I hear ya...I'm currently struggling with "Teen Angst Drama and PITA Syndrome" at my house!

I take strong probiotics every day to make sure I don't get C Diff from all the antibiotics. It's a dreadful disease and there really isn't a known cure once it's so entrenched in you. Eventually I'll have to go off the IV antibiotics and at that point I'll have to accept I'm probably not going to get any better. As long as I'm on them and making a little progress, I feel like there is a tiny glimmer of hope. They got me from years of being bedridden to being out of bed and able to do a few things. The MG was the final straw for me though in being just incapacitated and is really causing most of my issues now.

My symptoms are mostly MG and Bartonella I think. However I know the Lyme infection still lurks because the IV has cleared up things I didn't even know were Lyme related; my TMJ got better, two frozen shoulders cleared up, severe tailbone pain went away. Just hoping it will still give me more progress.

wow, that's great that your symptoms have gotten so much better Tracy... Did you ever feel sick with the antibiotics (Like I did with the vanc).. I wonder sometimes if i was having a "herx" reaction?? I just thought it was the meds.. but later thought 'huh" .. maybe there was more to it.... I'd do anything to get as close to my old self as possible!

I was wondering too if you were having a herx reaction! I got very very sick with antibiotics and herxing for the first several years I was on orals; I've actually been on antibiotics for 8 years. Definitely have had that many, many times. I don't get it as much now. I think my Lyme load is really down now. Thank God! It's taken YEARS of treatment though.