Southblues

No it doesnt in fact i still have to take miralax 2x per day, every day. however i have had chronic constipation since the guillain barre in 1984 which at least now i am regular.

How often do you take Mestinon
 

Hi all,

I just increased to 4 x 60 mil a day. Really have noticed lately what you are all saying about lasting 3 to 4 hours. Was having a little problem with droppy eyelid, at 3 x 60 mil, and feel this has helped quite a bit. However, I can still it wearing off at about 3 and 1/2 hours. This time of the year in South Texas, I have bad alergies, and may have contibuted. Once the alergy problem lets up, I may try 3 again, as I was fine on that before. I am new to mg and am still learning so we will will see.
FREDH

hi, Im currently taking 90mg 3x a day, and a mestinon timespan 180mg for nights. when i cant swallow i use the mestinon syrup. used to take 60mg 3x but doctor just up'd it to 90mg. also if im really bad i take half a 60mg with my timespan.

I think I am going to give it 1 more week and call the optic neurologist and ask to go on 60 mg 4 times a day. Right now I am still home from my fall last week. I am exhausted by 3pm and need a 3 hr nap. That will not fly when I go back to work next week. I get so weak by mid afternoon.

kathie

kATHIE,

iT SEEMS TO HAVE HEIPED ME SOME, TOO SOON TO SAY FOR SURE. wHEN THE EYE DROPPING BEGAN , I REALIZED I WAS TAKING 1- 60 AT 7;00 AM, 1 AT 11;30, AND THEN WENT UNTIL 7;00 PM FOR THE 3RD, AT SUPPER. NOW I GET A PAGAGE OF PEANUT CRACKERS, HAVE ABOUT 3, AND TAKE ONE AT 3:30 PM, THEN 7:30 PM. I WILL JUST HAVE TO SEE IF IT IS REALLY BETTER IN TIME
FREDH

I talked to the neuro's nurse. She said it is ok to up the mestinon to 60 mg x4. I am taking it at 7am, 11am, 3pm and 7pm. Hopefully there will be less than of a rollercoaster.

thanks
kathie

if you do not have any convulsive conditions ask about DAP(diaminopyridine) i find that the combination of the two medicines helps me live an almost normal life.
jim

jim, i saw an article that they use this a lot in Europe. Is this becoming standard in the US too? Has anyone else's doctor prescribed this? Are there any other companion drugs or supplements for MG that I should know about?

thanks everyone,
kathie

I live in rochester , new york . The university of rochester is involved in a study of DAP . I would guess that if you contacted a hospital with a neurology department , maybe they have a similar study . The name of the producer of this med. is jacobus pharmaceutical co. inc.
I started taking it the last part of '09 (I couldn't afford mestinon),the only side effect I experience is an occasional , very ,very slight tingling in the lips which is only occasional and goes away in a few minutes . This is an easy price to pay for being comfortable walking again.
Good luck and keep in touch.
jim