Hi MG'ers. I am currently in the middle of a workup for a diagnosis for symptoms that have been progressively been ailing me. I do have a documented Neuropathy in my feet. I have other symptoms that fit within a sort of MG category such as facial weakness, breathing and chewing weakness, weakness all over, I have a documented diplopia in my left eye, my eyelids droop.. etc etc. All of my test results seem to come back normal... I've had an LP, MRI, tons of blood work... the only thing that shows up is my neuropathy in my EMG. Also my blood ox is down a little bit.

My Neurologist said she thinks I have a polyneuropathy with a demyelinating component... most likely triggered by something toxic. She's currently researching that. I have requested that she test out tensilon on me, just to see if it has any effect on me. But I wanted to pose the question to the group of this:

Does anyone know if any Neurologists have tried a small dose of Mestinon on patients, just to see if it provides any relief? I want to ask my Neurologist to try this. I know that it's possible to have more than one Neurological condition and what if I have two Neurological conditions that are overlapping that are confusing things? Would it be worth a shot? What would the harm be in trying and how expensive is Mestinon if my insurance won't cover it because I don't have MG documented at this time?

I hope you are all doing well. I look forward to hearing back from you about this.

All the best,

Hankster1