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Old 02-02-2013, 11:02 AM #1
Anacrusis Anacrusis is offline
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Default My myasthenic arm question!

Apart from drug induced identifiable triggers, the myasthenic weakness I have is now extremely mild
and restricted mainly to the arms which have previously had the longest and most severe myasthenic involvement.

A normal person would also say some days their arms are weaker than other days.

So if without any ongoing exercise routine, one day you can lift your arms 8 times and they
suddenly turn to concrete - and another day its 15 - and then the next week its 6 lifts.

Is this also a non-myasthenic normal variation?

(Worst was a couple of years ago where arms were pretty much dead even before lifting them at all.
Best was in the summer - 35 lifts with Mestinon where feeling of falling concrete disappeared completely)

Thanks in advance,


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Old 02-02-2013, 02:26 PM #2
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Before I had MG, I could lift my arms a lot more than 15 times a day. I would say that what you have seems like myasthenic weakness that varies in intensity.
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Old 02-02-2013, 04:09 PM #3
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Quote:
Originally Posted by southblues View Post
Before I had MG, I could lift my arms a lot more than 15 times a day. I would say that what you have seems like myasthenic weakness that varies in intensity.
Thanks....15 is the most for me in the last few years (and just recent)

I donīt actually remember but I know I must surely have been able to do more before -
I did river raft the Grand Canyon
I suppose strength doesnīt fluctuate that much in normal people -
I just did not feel like discussing this with any over zealous healthy normals today
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Old 02-02-2013, 10:56 PM #4
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I never had problems lifting my arms before and it did not vary. I was very strong and always on the go, I could move and lift heavy boxes, did a lot around the house, moved tons of stuff. I could lift children and carry them around. It really never varied! This is MG stuff.
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Old 02-03-2013, 04:32 AM #5
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Quote:
Originally Posted by Tracy9 View Post
I could lift children and carry them around. It really never varied!
Hey Thanks Tracy9! That sentence did ring a bell!

I do now remember holding and rocking my 4 kilo baby for 3 solid hours one night when he had colic about 5 years ago.

Yet a few years later I would struggle to hold my own coffee cup up to my face.....And a milkshake? - Forget it!

The minute you accept one normal another normal eagerly comes and takes over....

Have a nice day


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Old 02-03-2013, 08:06 AM #6
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Good point about carrying babies. When my 24 year old daughter was a baby, I carried her all the time. She was a fat baby too. 25 pounds at 9 months. She screamed if I ever put her down, so it was easier just to carry her on my left him and with my left arm while using my right hand to do stuff around the house. The spoiled little brat. When I was at work, she was perfectly content to play on the floor while my husband did all sorts of stuff.
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